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This video is shocking, horrifying:

The bold proclamation about ‘putting a pillow over its face’ feels like a different kind of evil even than what we’ve seen proclaimed by abortion providers and their supporters.

But it really isn’t.  Through every generation since the fall there have been people who thought or behaved exactly like what was articulated in this video.  The fact that someone would feel free to say it, for whatever reason, is more a sign of the culture than it is of the person saying it.

The answer to that evil remains the same:  Jesus.

And the Word became flesh and dwelt among us, and we have seen his glory, glory as of the only Son from the Father, full of grace and truth. John 1:14

Again Jesus spoke to them, saying, “I am the light of the world. Whoever follows me will not walk in darkness, but will have the light of life.” John 8:12

Jesus answered them, “Truly, truly, I say to you, everyone who commits sin is a slave to sin. The slave does not remain in the house forever; the son remains forever. So if the Son sets you free, you will be free indeed. John 8:34-36

The world needs to know about this Jesus.  The world needs to understand that God is a very big God, sovereign over everything that happens, including over little babies who suffer.  And he provided Jesus.

It is an awesome thing to know and cling to and love this Jesus, who rips out hearts of stone that lead to bold statements about killing babies, and replaces it with hearts of flesh (Ezekiel 36:26) that trust God to help every day address suffering in little children.

This video clip was forwarded to me, so I don’t know how the woman in the religious collar responded.  It looked like she was as horrified as I felt.

Regardless, the ultimate answer is Jesus.

Finding general agreement on any area concerning Christian belief and practice is almost impossible.  But on the topic of how Christian communities across the theological spectrum deal with disability, there is much agreement.  In facing this issue, those of us who find the Bible entirely reliable and true have a significant advantage over those who do not.

For example, Justin Reimer, founder and director of The Elisha Foundation and Deborah Beth Creamer, liberal theologian and author of Copious Hosting, are about a thousand miles apart on how they understand God and disability.

But within a span of two days, I experienced them agreeing:

Both observed that issues related to disability are frequently left to those who are directly experiencing disability rather than the entire community of the church.

Justin shared a story on Saturday of a mother of a child with a disability who advocated within her church for services for children with disabilities.   The proposal was approved – and this young mother was then put in charge of providing those services.  This, of course, makes it harder for that young mother to experience church; nobody is serving her needs.

On Monday I found Deborah Beth Creamer agreeing that this is a problem, this time from the perspective of disability theology and scholarship:

When religious studies or seminary courses engage disability at all, it is often in a separate unit or discussion (often at the end of the semester), an addendum or afterthought. Those of us who work in the area of disability theology are often considered to be dealing with “special” interests (reminiscent of “special” education), and are typically (and uncritically) assumed to have a particular connection to these issues—not because we have/are flesh, as Betcher might claim, but because we must have a “personal” (read: nonacademic) experience with disability/impairment. These sorts of claims and positionings are frustrating, not only insofar as they negate complexity and ignore the fleshly realities that Betcher so helpfully names but also because they position disability as a theme and experience best left to closets, corners, and other closed spaces. Deborah Creamer, “Embracing Limits, Queering Embodiment: Creating/Creative Possibilities for Disability Theology,” Journal of Feminist Studies in Religion, September 1, 2010, p. 124

To combat this isolation, most people concerned about this issue (including me) make a logical appeal to those who are not interested: just look at the massive numbers of people with disabilities around us!  Estimates range from 10 – 20% of the population living with a disabling condition.  In the United States in 2007, the U.S. Census Bureau estimated that 41 million Americans were living with a disabling condition.  Together, disabled Americans would be the third largest ethnic group in the United States, slightly behind the number of Hispanic/Latino Americans (46.9 million) and slightly ahead of African Americans (36.7 million).

There is a better argument, but only for those of us who believe the Bible is entirely reliable and inerrant.  This argument would not work for theologians or pastors who discount or dismiss the notion that God has provided us a book that says accurate things about his character and his abilities and his creation.

Here’s that argument:

God cares about disability.  There are hundreds of references in the Bible to disease, disability or physical differences.  Some of those references directly proclaim God’s sovereignty over disability, including his purposefully creating some to live with disability in this life.  Others are illustrative of core principles. Still others are, on first look, very difficult to understand and initially troubling.

All say something about who God is.

Thus, if you care what God has to say about a subject, and understand that all scripture is “breathed out by God and profitable for teaching, for reproof, for correction, and for training in righteousness, that the man of God may be competent, equipped for every good work (2 Timothy 3:16-17), then you should be interested in disability.  Disability is a significant theological issue and it profoundly affects many people under your care.

I am quite aware that pastors and leaders are faced with an almost impossible number of issues on a regular basis, and that disability tends to be a niche issue.  That should not change how we view or behave towards our leaders.  We should strive to be known, as a group, as reasonable, submissive, gracious and kind to those in authority as pastors and elders.

So, let us be both humble and bold about asking people to care about this issue with us.  We do not have to use guilt; we can invite people into this massively important issue to God, for his glory, and for their good.

Because Greg knows what disability does to a family.  And he clearly sees God’s remarkable, sovereign grace:

I often wonder what it would be like to be a normal dad, of a normal family, with a normal son. I sometimes imagine sitting through an entire church service or ball game or date with my wife without having to answer an urgent alarm activated by Jake.  I would probably have more friends, more time, and more worldly accomplishments.  I would definitely have more pride.

In return, there would be less opportunity to recognize the amazing grace that God displays each and every day through the disability of my son.  It is this grace that humiliates pride, humbles my soul, deepens my shallowness and allows me to see what is most important in life.  From Wresting with an Angel, pp. 40-41

I learned from Greg and his publisher that it is better to purchase books directly from Cruciform Press than through other vendors like Amazon.  It is also cheaper!

And for those outside of the United States, there is a PDF version available for sale, though you may want to contact the publisher before attempting to purchase.

Yes, God is that good

During the Desiring God National Conference, I had the opportunity to meet in person several people I only knew by their work and their writings. I also had the chance to see some old friends, and even had members of my family attend their first conference.

And the connection was entirely based on loving Jesus, wanting to know him better, and encouraging others to treasure him above all things. It was humbling and beautiful and wonderful.

A highlight was a dinner with friends from far away and close by, all connected by disability in our families.

Ours is a strange fraternity in one sense – we don’t usually choose to join, although I met one young pastor who is pursuing adopting a child with disabilities.

Yet, as I looked around that table, I saw a group of people who had been transformed by God into seeing the strength and majesty of God over disability, helping us daily to persevere in what he has given us to do and profoundly feeling God’s blessing.

So I walk away from this weekend deeply encouraged and excited about what God might be pleased to do with and through our unusual families.

Yes, God is sovereign over disability, and he is entirely good.

Weather:  And they went and woke him, saying, “Master, Master, we are perishing!” And he awoke and rebuked the wind and the raging waves, and they ceased, and there was a calm. He said to them, “Where is your faith?” And they were afraid, and they marveled, saying to one another, “Who then is this, that he commands even winds and water, and they obey him?” Luke 8:24-25

Leaders: The king’s heart is a stream of water in the hand of the Lord; he turns it wherever he will. Proverbs 21:1

Life: Your eyes saw my unformed substance; in your book were written, every one of them, the days that were formed for me, when as yet there was none of them. Psalm 139:16

Eternity: I give them eternal life, and they will never perish, and no one will snatch them out of my hand. John 10:28

Brothers, do not be children in your thinking. Be infants in evil, but in your thinking be mature. 1 Corinthians 14:20

The Desiring God National Conference, Think: The Life of the Mind and the Love of God, begins today (Friday).  Other than the conference on suffering in 2005, this may be the conference I have been most anticipating.

This is an incredibly important topic for those of us dealing with disability:

  • In our daily lives we have more people and processes than most of us can count involved in the medical, educational and legal lives of our children.  Right now I have paperwork to deal with for Paul’s schooling.  There’s another pile that deals with his medical care.  The decisions we make for our children are frequently difficult and potentially life-changing or even life-threatening.
  • In our universities and colleges, professors are making arguments to packed lecture halls against the very survival of our children with disabilities.
  • Liberal theologians in seminaries do not take the Bible seriously, stripping God of his rightful place as sovereign over the universe, and removing any hope of the future grace God has promised.
  • Our pleasure-loving culture wants nothing to do with the sacrifices and suffering inherent with disability.  Removing the problem, whether an unborn child with Down syndrome or an elderly person with dementia, is preferable than serving in love to the end.

  • There are those who want to trap us parents in a box of sentimentality, as if the love we have for our children disqualifies us from objective engagement with the world.
  • We are ‘heros’ and our children are ‘angels’ – and the real hardships we face are minimized or ignored.

Yes, it can feel as though we are surrounded by experts and educators and specialists and colleagues and even extended family members who ‘know’ what our experience is or will be when disability enters our lives.  They are more than happy to do our thinking for us.

We cannot let them.  They are not God.

And we have two significant advantages:

First, we can live in the knowledge that we have been given sure promises, secured by the very life and death and resurrection of Jesus Christ.  Our perceptions, or anybody else’s, about disability pale in comparison to the reality and certainty of the promises of God.

Second, even if we do not have the credentials or the giftings to counter evil arguments, especially those against our children with disabilities, God will hold people accountable and will judge rightly:

For the wrath of God is revealed from heaven against all ungodliness and unrighteousness of men, who by their unrighteousness suppress the truth.  For what can be known about God is plain to them, because God has shown it to them.  For his invisible attributes, namely, his eternal power and divine nature, have been clearly perceived, ever since the creation of the world, in the things that have been made. So they are without excuse. Romans 1:18-20

So, we can live free to engage this world with our hearts and our minds, knowing God will help us even as he reigns perfectly over it.  We can be unafraid to call evil what it is, no matter the pretty package or academic language that is attached to it.

And that freedom we have in God includes the opportunity, unlike those trapped without a savior in Jesus or a helper in the Holy Spirit, for God to help us think clearly and joyfully, full of hope even in the middle of the extraordinary circumstances of this evil age.

And I want to learn how to do that better.  Which is why I’m excited about what I might experience at the conference this weekend.

The disability community has a great friend in Justin Taylor.  Many years ago he gave lectures at Bethlehem on the case against abortion, which opened my eyes to new ways to engage that issue.  I love how he thinks, and how he has helped me think, about any number of issues.

I highly recommend his blog in general, and specifically today he brings to the world two books I also highly recommend.

Thank you, Justin! May God open many, many more eyes to what he is doing on this issue of disability!

Wednesday afternoon I was reminded that in some parts of the world children with disabilities are immediately hidden away or given up to orphanages.  The shame is too great for families to bear.  The churches in those areas are too ill equipped to intervene or even prepare their people for the situations they find themselves in.

It was a good reminder that we are not ashamed of those God has created for his  glory to live with disability.  And even if we started out or continue to struggle with being ashamed or angry or bitter, God can turn cold, hard hearts into ones passionate for his name’s sake, completely in love with those entrusted to us by the creator himself.

On Friday the Desiring God National Conference begins.  We are expecting more than 3,500 people to attend.

This year, attendees will have three different opportunities to be introduced to disability:

  • Krista Horning will be signing Just the Way I Am at 11:00 a.m. on Friday morning, and the book will be sold in the bookstore at the conference
  • The Elisha Foundation will have a booth
  • Wrestling with an Angel will be available for sale for the first time, Lord willing.

Will you pray with us?

  • That those who have never even thought about disability will be gripped by God’s sovereignty and goodness over disability, and will be given a new, God-given imagination for welcoming those with disabilities into their churches
  • That those who are coming with hard, deep questions about the suffering they or their children with disabilities are experiencing will be overwhelmed by how short this life is, by how long eternity is, and by how massively strong and purposeful God is in what he is doing, for his glory and for their good
  • That these resources would ignite passionate spreaders of the supremacy of God in all things for the joy of all peoples through Jesus Christ.  Where the world sees weakness, expense and inconvenience, may thousands see the most vulnerable among us as God created them: indispensable (1 Corinthians 12:22).

Note: some of you may have already seen it when I accidentally posted on Sunday.  I have a little more info than I did before!

I have recommended Greg Lucas’ blog,  Wrestling with an Angel, many times.  Greg is the real deal, having gone through much hardship in his family while clinging to the promises of God.  He loves the Word.

And soon his book, Wrestling with an Angel, will be available!

I was grateful to be included as a reader of an early draft, and was glad to provide this endorsement:

It is the rare book that makes much of God and our dependency on Him while also celebrating His goodness through hard things. Using his own example of parenting a child with significant disabilities, Greg demonstrates what relying on a sovereign God through extreme difficulty and suffering looks like. This book is a gift to the church, and particularly to men who need an example of masculine, Biblical leadership in the face of complex, confusing, and overwhelming circumstances. If you have ever confronted hardship and questioned God’s goodness, this book provides a real-life example of trusting in the promises of God.

Noel Piper, Justin Taylor and Justin Reimer have also recommended it.  You can read their endorsements on Cruciform Press’ facebook page (note: you might need to be logged in to Facebook for this link to work).

Lord willing, advance copies will be available for purchase at the Desiring God National Conference!  I understand it will be available on the Cruciform Press website around November 1.  Watch here for more details on how and where to purchase.

Emily Colson, daughter of Chuck Colson and mother to Max, has added to the growing number of parents who are sharing their stories of raising a child with significant disabilities.  She brings a welcome Christian orientation to her book.

Max lives with autism and Emily Colson does not hold back in her writing about it.  We are introduced to the deep challenges his disabilities create in both their lives, the kind of challenges other parents will immediately recognize.  Her writing is clean and clear and frequently beautiful.

There is a great deal that churches can learn from her story.  Her friend, ‘Peppermint Patty,’ exemplifies some of the best of Christian community – immediately welcoming Emily and Max into her life, encouraging Emily to connect with other women for prayer and Bible study, and going with Emily to important meetings with doctors and other specialists.  We have been blessed to have such people in our lives; her descriptions of various people frequently reminded me of people from Bethlehem.

Unfortunately, the video for this book, created by Zondervan, does not even begin to demonstrate the challenges associated with his disability and I believe does a disservice to the book.

And while there is much to commend, I find I can only cautiously recommend it:

  • She frequently talks about the Bible, but infrequently actually quotes it.  There were many natural opportunities to do so.  Her story is certainly inspirational, but it is the Word that is both foundational and transformational.
  • There were some head-scratching moments when I wasn’t sure what conclusion I was supposed to take away.  For example, there’s a heartwarming story about a visit to a Catholic church, and the impact that Max had on several people during his visit.  Though it is a delightful experience, there is no acknowledgment on the author’s part that Catholics and Evangelicals differ on some important aspects about God and his word.  I don’t by any means suggest she isn’t serious about her faith; she most certainly is.  But a non-Christian might conclude there really isn’t all that much difference between the two.

Finally, as a man, I wasn’t put off by how feminine this book is, but it did make me long for a more masculine voice on this subject.

Fortunately, that voice is coming very soon!  Watch the blog for more details.