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Baby RB Has Died

The little boy I wrote about two weeks ago with congenital myasthenic syndrome has died.  After hearing every medical professional talk about the pain and suffering his son was going through, his father decided not to contest his ex-wife’s and the hospital’s petition to remove life-saving technology.  The ventilator was removed last Friday, and Baby RB died shortly thereafter.

Thus, the judge in this case was not forced to make the first-ever decision to remove life-supporting technology from a baby with no brain damage when a parent wants to continue such treatment.  He seemed relieved in his public statements.

This particular case is very sad, but it sets no precedents other than being highly publicized.  But such publicity might be dangerous to other babies identified with that condition. Continue Reading »

An excerpt from Pastor John’s sermon on John 5:1-18.

This is almost a rule

When I read a book about disability and the Bible or religion or church or theology, and an emphasis is made on using ‘people-first’ language (for example, saying ‘a boy with autism’ rather than ‘an autistic boy’) in the opening pages, I can almost guarantee it will not be God-centered.

Using people-first language is a fine thing.  But I haven’t found it to be an indicator of much with regards to whether or not someone will treat my son with love and respect.

Books on disability or suffering that start with God and his authority and the centrality of the cross of Jesus Christ in dealing with sin, however, usually end up talking about people with disabilities in honoring, dignified ways.

If you haven’t read Joe Eaton‘s statement on disability and the sovereignty of God, please go back and read that first.  It is now the third most-read post of the Disability Ministry blog in our 15 month existence, first on Webjam and now on WordPress.

Joe’s parents, Brian and Cindy Eaton, are two of the most intentional people I have met in terms of their spiritual leadership of their family, which includes five children.  Brian is one of the great encouragers in my life and I am grateful God brought us together.

Brian also happens to be the Director of Children Desiring God.

Children Desiring God was birthed out of Bethlehem Baptist Church, more specifically, out of the faithful call of David and Sally Michael in wanting to bring the rich, deep, life-giving, Biblical message of Christian hedonism to children, even very young children.  Continue Reading »

I was at Bethlehem for a meeting yesterday and as I parked at the downtown campus I noticed three people leaving Bethlehem.

The first was a Somali woman, presumably Muslim, waiting for her ride – and using a wheelchair.  At the other entrance was a blind man with a cane being directed to his ride by the third person, who was obviously his driver.

I don’t know any of their circumstance or why they were at church, but I love how good God is in bringing those two individuals with disabilities and that driver to Bethlehem.  Their presence makes me happy!  And it reminded me of how Jesus did things:

And the blind and the lame came to him in the temple, and he healed them.  Matthew 21:14

Please pray that Bethlehem would be the kind of place where all people of all abilities and cultures are drawn and feel welcome to come learn about this Jesus who heals us from things much worse than disabilities – our own sin.

And pray that all three people I saw would know the kind of healing that Jesus provides for eternity!

. . . having the eyes of your hearts enlightened, that you may know what is the hope to which he has called you, what are the riches of his glorious inheritance in the saints, and what is the immeasurable greatness of his power toward us who believe. . . Ephesian 1:18-19

Disability references are found everywhere in the Bible – more than 350 verses in 40 of the 66 books contain some reference to disability, disease or skin condition.  It is suggested at times that certain references to disability are metaphors for something else.  For example, Paul writes this to the Corinthians:

In their case the god of this world has blinded the minds of the unbelievers, to keep them from seeing the light of the gospel of the glory of Christ, who is the image of God. 2 Corinthians 4:4

“Blinded the minds” is obviously pointing to something other than a lack of physical sight.  Yet we should be stunned at how devastating this type of blindness is!  Paul is not just playing with words to get people’s attention, he is talking about a literal blindness far more devastating than not being able to see in this physical world.

Pastor John writes about how stunning this type of  blindness really is:

We are talking about glory—radiance, effulgence, brightness. Glory is the outshining of whatever is glorious. The glory of God is the beautiful brightness of God. There is no greater brightness. Nothing in the universe, nor in the imagination of any man or angel, is brighter than the brightness of God. This makes the blindness of 2 Corinthians 4:4 shocking in its effect. Calvin says it with the kind of amazement it deserves: “They do not see the midday sun.” That is how plain the glory of God is in the gospel. When God declares the omnipotent word of creation and “[shines] in our hearts to give the light of the knowledge of the glory of God in the face of Jesus Christ,” the curtains are pulled back in the window of our Alpine chalet, and the morning sun, reflected off the Alps of Christ, fills the room with glory. From God Is the Gospel, p. 74

To have the type of blindness Paul refers to in 2 Corinthians 4:4 is infinitely worse than having natural eyes that don’t work.  But if you see the glory of Christ, you have been given the best kind of sight of all – regardless of whether your eyes work or not.  And if you have perfect sight, but don’t understand Jesus in this way, then seek him more than you have sought anything ever in your life.  Your eternity is at stake.

In the journal Fetal Diagnosis and Therapy, researchers Susana Aguilera, Peter Soothill, Mark Denbow, and Ian Pople found that 72% of the women in their study chose to abort their children with spina bifida upon diagnosis.

The Mayo Clinic describes the consequences of spina bifida this way:

Fortunately, with the proper medical care, children with spina bifida can lead active and productive lives. Most are successful in school and many are actively involved in modified sports activities despite their physical challenges. Twenty-year follow-up studies of children with spina bifida show they enter college in the same proportion as the general population, and many are actively employed. With recent advancements in care for these children, their prognosis continues to improve.

Joe Eaton, the young man who wrote the very helpful statement about God’s sovereignty over suffering that was posted on Saturday, was born with spina bifida.

Parents, please, let those babies live.

My frame was not hidden from you,
when I was being made in secret,
intricately woven in the depths of the earth.
Your eyes saw my unformed substance;
in your book were written, every one of them,
the days that were formed for me,
when as yet there was none of them.

Psalm 139:15-16

I have read dozens of books, articles and web sites on disability, suffering and the Bible.  What you will see below may be the finest piece on disability and the sovereignty of God I have ever read.

It was written by Joe Eaton and is particularly powerful because Joe lives with the permanently disabling condition of spina bifida.  Please join me in praising God for the insight and wisdom God has granted Joe, who is just completing his first semester of college.

The Sovereignty of God in Suffering, by Joe Eaton (first posted on Facebook and used with his permission here)

A friend and I were talking a while ago about the sovereignty of God. She asked me how I thought the sovereignty of God related to disability. More specifically, how does believing the doctrine of the sovereignty of God affect my own experience with disability? At the time, my thoughts on the subject I weren’t very well-prepared or well-organized. But I have also been meaning to write some thoughts about this since I started this blog! So, finally, I’ve written some of my thoughts on this subject. I pray that these musings are Bible-saturated and helpful…

An understanding of the sovereignty of God has to start with an understanding of the glory of God. Romans 11:36 says, “For from Him and through Him and to Him are all things. To Him be glory forever. Amen.” In other words, every detail of life is orchestrated for the glory of God. When I say that God is sovereign, I mean that “For those who love God, all things work together for good, for those who are called according to His purpose (Romans 8:28).” In other words, God has ordained that no matter what happens to those of us who are elect, Christ would get the glory and we would get the joy. When we talk about the sovereignty of God, we have to start there. To believe in the sovereignty of God is to trust Him, that His promises are true and that His purposes are good all the time, whether we understand what He’s doing or not, because He’s always working for His good and our joy. Continue Reading »

About a month ago I reported on an email I received from Jan Lacher, who had very encouraging news about adult leaders who wanted to include her son Michael, who lives with severe disabilities, in their Wednesday evening class at Bethlehem’s north campus.  Yesterday I received an email from Jan on what recently happened in that class.  I was greatly encouraged!  Here is that report, with Jan’s permission:

Hi John,

Let me give you a little update about Michael’s Wednesday night second grade class for Connection.

While waiting in line to enter the room with Michael last evening, a mom of one of Michael’s classmates approached me.  She proceeded to tell me how much impact that Michael’s presence had on her son who is in the class.   Continue Reading »

And the blind and the lame came to him in the temple, and he healed them. But when the chief priests and the scribes saw the wonderful things that he did, and the children crying out in the temple, “Hosanna to the Son of David!” they were indignant, and they said to him, “Do you hear what these are saying?” And Jesus said to them, “Yes; have you never read,

“‘Out of the mouth of infants and nursing babies you have prepared praise’?”

Matthew 21:14-16

My apologies for the quality of the video.