Feeds:
Posts
Comments

Archive for the ‘News’ Category

Lisa Belkin maintains the Motherlode Blog for the New York Times Magazine.  Unlike most parenting blogs, she frequently covers the subject of disability.

And I was delighted to see “Deciding Not to Screen for Down Syndrome” as the headline of her blog yesterday.  She invited Amy Julia Becker, who is pregnant with her third child and already the mother of a girl with Down syndrome, to explain why she was not going to have prenatal testing on her third child.

This is not a defense of life under the umbrella of the sovereignty of God – there is not one mention of God.

But it highlights the fact that some of the most dangerous people our babies with disabilities will face are not ‘out there’ in the culture.  Rather, it is the doctors, the very ones who should be caring for these precious, vulnerable, little ones, who are too often recommending a child’s destruction.

One answer to that: a program at the Robert Wood Johnson Medical School in which medical students meet families experiencing disability to get the real story.  I liked that idea.

This is not sufficient to change the culture, of course.  Only Jesus can do that.

But may God use this article to make many mothers and fathers – and hopefully doctors – pause to think before they make a horrendous, final choice about their child.

Read Full Post »

If you do not have the time to listen to the entire interview of Mary and Krista Horning on KTIS, here is about a two minute clip of Krista talking about her personal situation and God’s preciousness in her life.

This is how Christian hedonists talk – sorrowful, yet always rejoicing!

Copies of Just the Way I Am are still available through Desiring God.

Thank you to KTIS and the Faith Radio network for making this interview freely available.

Read Full Post »

Stephen Hawking has written a new book, The Grand Design, in which he makes statements about God, or at least asserts that God is not necessary to explain the universe.

This isn’t a post about that.  James Anderson wrote a helpful reply if you are interested in exploring  that issue further.

No, this is a lament:  There are ‘Christians’ who seem to think Dr. Hawking’s disability is worth mentioning in their usually-inadequate defense of  God or the Bible.  And by ‘mentioning’ I mean they use it in ways to make fun of or defame Dr. Hawking.

There were enough negative references to his disability on Twitter that a Washington Post blogger wrote a column on it.

I was hoping this was an over-statement – how could anyone be so rude?  Or childish?  Or uninformed?  Unfortunately, after I read the comments attached to a couple of major newspaper articles, I saw the same thing as that Post blogger.  It wasn’t many, but enough to be discouraging.

I expect this new book from Dr. Hawking will be an item for a while.  So, even if it is only a few who conduct themselves badly in public, let’s help people in our churches understand two things:

  1. Stephen Hawking is not an idiot; Christians (and everyone else) look foolish when calling him that.  He may be an opportunist – there is a reason he writes ‘popular’ works rather than limiting his writings to peer-reviewed journals and seminars – but he is no ‘idiot’ in the sense that most people mean.
  2. Dr. Hawking’s disability is no indicator of his standing before God.  God is completely free to do whatever he wants to with his creation, including creating geniuses to live with significant disabilities who will deny him.

I find it difficult to do this without being judgmental or self-righteous.  That, of course, doesn’t invite people to consider the heart-work that needs to happen which results in a changed attitude and actions.  It does us no good if people feel bullied into silence.

Yet, when people in our churches make a direct connection between disability, disease or suffering and God’s displeasure, they are contradicting the Biblical accounts of Job, the Apostle Paul and the man born blind.  That can’t go unchallenged, even if the challenge needs to be winsome.

And that ultimately becomes a statement about God and his sovereignty over his creation.

Of course I disagree with Dr. Hawking’s conclusions about God.  That breaks my heart.

But it also breaks my heart when those who claim the name of Jesus decide sarcastic remarks about disability will somehow make Jesus look beautiful.

Read Full Post »

Krista Horning will be signing her book, Just the Way I Am: God’s Good Design in Disability on Saturday, October 2 at the Desiring God National Conference.

Now is a great time of year to think about this book as a gift to others as well!

If you are attending or volunteering at the conference, please plan on coming to this book signing.

I’ll be there as well and would love to greet you and hear your story about how God is using this book!

Read Full Post »

First posted on January 4, 2010:

Isn’t that what every parent wants?  Of course there’s a great difference  between our culture’s understanding of happiness and Christian hedonism!

I know the following statement has lots of exceptions; I try to stay away from sweeping, romantic statements about disability and happiness.  But the contrast offered by Dr. C. Everett Koop was just too good to pass up because of how our culture views disability, normalcy and the opportunity to experience happiness:

Yet it has been my constant experience that disability and unhappiness do not go hand in hand. The most unhappy children I have known have been completely normal. On the other hand, there is remarkable joy and happiness in the lives of most handicapped children; yet some have borne burdens which I would have found difficult to face indeed.

C. Everett Koop, M.D., Sc.D.
former Surgeon General, U.S. Public Health Service

Twenty-fifth Anniversary Foundation Day Lecture
Our Lady’s Hospital for Sick Children, Dublin, Ireland

Read Full Post »

This week marks the beginning of orientation for the new students of Bethlehem College and Seminary.  This post from December 30, 2009 continues to reflect my desires for and affections of all the people involved with this new venture.

Pastor John wrote his thanks to God for Bethlehem College and Seminary this morning.  I join him in praising God for this initiative at Bethlehem!

Disability ministries need pastors who have been prepared like Pastor John hopes they will be through BCS:

At the heart of this vision is the invincible God, the infallible Bible, and the indispensible Gospel of Jesus Christ. We want future pastors to be stunned by the greatness of God. And stay stunned by living in the Bible. And spread this amazement to sinners, who qualify through faith alone because of the Gospel.

We want them to love the church. The real live, blemished, blood-bought bride of Christ. So we sink them into ministry while they are here.

Why is that so important for a disability ministry?

Because disability is hard.  We need to know that God is sovereign over all things and good at all times in the midst of hard things.

We NEED pastors who are stunned by the greatness of God.

We need our pastors to be rock-solid in their understanding of who God is, able to articulate the truth of the Bible, and able to personally demonstrate how glad they are to be dependent on him.  Then they can love people in the midst of deepest pain and struggle – because God will provide for them and through them what their hurting people need.

So I am excited about BCS and invite you to join me in praying for them, for the sake of churches that may not yet even exist and children with disabilities not yet born and adults who have not yet experienced disability.

Read Full Post »

Lord willing, we’re somewhere between Sioux Falls and Custer, South Dakota as you read this on Sunday.  This is a repeat of a post written by my friend and fellow dad, Chris Nelson, from June 22, 2010.

The Pursuit of Happiness

The depth of human depravity is readily apparent when we are “me” centered rather than God-centered.  When the pursuit of personal happiness trumps the pursuit of holiness.  When we are so busy pursuing our sin-saturated mud puddles that we neglect to even consider what it might mean to embrace God’s offer of an eternal holiday at the sea.

On June 8 it was reported in a story on startribune.com that a Colorado woman was accused of killing her 6 month old baby.  Her motive?  “She believed the boy was autistic and thought his condition would ruin her life.”

She killed her own baby, knitted together in her womb by her Sovereign and Loving Creator, because she thought he might cramp her style.  She reportedly considered taking her own life instead, but didn’t want to unduly burden her husband with the child.  That’s chilling.  That’s real.  That’s the overflow of the human heart un-broken and un-repentant over sin, and un-surrendered to the restraining and sustaining and transforming mercy and grace of God as revealed in Christ Jesus.

As I reflected on this story, and my own struggle to mortify my sin as it is daily revealed to me through the gift of a mentally disabled son, Pastor John’s word from his sermon Sustained by Sovereign Grace-Forever, came to mind:

Not grace to bar what is not bliss,
Nor flight from all distress, but this:
The grace that orders our trouble and pain,
And then, in the darkness, is there to sustain.

True and abiding joy isn’t in being burden-less.  It is in being upheld and transformed through the burden by the grace of God.  It is, when facing often weighty temptations to wallow in despair and anger and self pity, to repent afresh of our sin and gaze up from the foot of the cross to marvel at the one who paid our debt, and to freshly turn our focus to the risen Lord and His purposes, rather than our pathetic pursuits of momentary and fleeting escape from hard things.

Read Full Post »

Incredibly GOOD news!

From the July 2007 edition of American Journal of Mental Retardation:  Divorce in Families of Children With Down Syndrome: A Population-Based Study by Richard C. Urbano and Robert M. Hodapp:

In this study, we examined the nature, timing, and correlates of divorce in families of children with Down syndrome (647), other birth defects (10,283) and no identified disability (361,154). Divorce rates among families of children with Down syndrome were lower than in the other two groups.

Wow!  Lower than families not experiencing disability!  I’ve never heard that before.

In fact, usually what we hear for any disability is that our marriage is more likely to fail – FAR more likely to fail.  I just listened to a lecture where, without substantiation, the lecturer said that 80-85% of Christian marriages fail when a child with a disability is born.

It simply isn’t true – but it sure says a lot about how we think about suffering, disability, marriage and God by how easily we believe it could be.

Why people think they are being helpful when they tell us that divorce is a common outcome after having a child with a disability, particularly at the very outset (I heard it the first time when Paul was less than two weeks old), just baffles me.

A few years ago I realized I was repeating marriage statistics that others had told me – and I had never seen a study or a reference ever given.  I try not to do that in this forum; if a statistic shows up, I will do my best to provide a link to the study or authority providing that statistic.

And, frankly, statistics shouldn’t mean all that much to us.  We belong to God.  Let every marriage around us fail for whatever reason. But with God’s help, our marriages can stand and we can experience a peace, contentment and joy that makes Jesus look very beautiful in the midst of our circumstances.  And when marriages fail in this fallen world, God is still sovereign and ready to provide.  Let us persist in pointing to God.

Dr. Urbano and Dr. Hodapp also helpfully referenced other studies on marriage and disability, which I hope to get my hands on.  The news isn’t all good; apparently there is a slightly higher divorce rate when parents experience other kinds of disabilities in their children.

But it certainly isn’t 85%.  Praise God for that!

Read Full Post »

Justin Taylor pointed to a heart-breakingly real statement on miscarriage yesterday: Unwanted Counsel during Times of Grief.  I recommend it.

Unwanted counsel is another thing those of us dealing with disability live with.

I learned recently that a distant family member has been quietly questioning our parenting of Paul – that if only we had done things differently during his earlier years, he would have had a different outcome in behavior today.

After 15 years, such ‘observations’ are just so ridiculous that my first response was laughter.  We’re not perfect parents by any means, but where he lands on the autism spectrum means certain things just won’t ever be possible for him, even if we had done things perfectly.

But feeling like I can ‘handle’ such comments, that they don’t affect me anymore, also meant I didn’t come to the cross and lay it before Jesus.  I might have laughed, but it was certainly not with joy.

Over the next days I let myself feed bitterness, but just around the edges.  A self-righteous comparison would come, and rather than kill it, I would just let it be.  Then another thought would come.  The bitterness grew, and a seed of anger was planted beside it.

Dragging such thoughts into the light is good for me; it encourages me to kill the sin feeding those evil thoughts.

We need to help people know how to talk to us about disability in ways that are helpful and life-giving, for them and for ourselves.  That isn’t easy for me because it means I have to actually do something for their benefit rather than stew in my own hurt.

People will think foolish, hurtful thoughts.  Some of those people will make it worse by actually saying foolish, hurtful things.  The wounds can go very deep, right to the core.

And, thankfully, Jesus remains the answer to every sin, and to our being reconciled with each other:

But if we walk in the light, as he is in the light, we have fellowship with one another, and the blood of Jesus his Son cleanses us from all sin. If we say we have no sin, we deceive ourselves, and the truth is not in us. If we confess our sins, he is faithful and just to forgive us our sins and to cleanse us from all unrighteousness. 1 John 1:7-9

Read Full Post »

Happy Birthday, Krista Horning!

Today is Krista Horning’s birthday!

In addition to being the author of Just the Way I Am: God’s Good Design in Disability, Krista has been a long-time volunteer at Bethlehem.  If memory serves correctly, she was probably about 12 when she started volunteering, including serving as an aide for my Paul for several years.  When her book was still just in the concept phase, she and her dad were visiting Sunday School classes to talk about disability and God’s good design.

In other words, she has not wasted her young life!  And I expect God will continue to give her opportunities to make much of him in the coming years.

Thank you, Lord, for Krista, and for bringing her to Bethlehem!  We have been deeply blessed by your sovereign grace on her life, by your strengthening her parents to persevere through much hardship, and in how you are shaping her younger sister and brother.

Read Full Post »

« Newer Posts - Older Posts »