I found a booklet written by Jan Lacher when she was still pretty new to parenting a child with a disability as Michael was quite young. Knowing what Michael and the entire family have gone through since this was first written, and seeing the evident faith in Jan and Mark that has continued to grow, made the words in this little book even more precious:
The ongoing nature of Michael’s situation is daunting, but we are not without hope. What seems impossible to us is possible with God. His mercies are new every morning. I have seen his faithfulness even when things do not go the way we want them.
I am trying to cultivate an attitude of thankfulness, lest I get sucked down into the tar pit of despair. I claim the hope that is in Christ, trusting that he will work this out for our good, even if Michael’s health deteriorates.
When Michael was in the hospital after his surgery, he was sleeping in his crib; I was looking at his big, swollen head with the 40 plus staples, and God led me to John 11 which talks about the suffering and death of Lazarus. Even though there was great suffering and grief by Lazarus and his family, Jesus told his disciples that he was glad for their sake so that they would believe and that it was for the glory of God.
Meditating on this passage and others, gives me hope that Michael’s suffering is not in vain. I also take comfort knowing that as I watch Michael continue to suffer with his seizures, I have a heavenly Father who knows what it is like to have watched his son suffer, all without anesthesia or morphine.
The entire booklet can still be found online here: Creations of God Impacted by Disability: One Mother’s Thoughts.
And I even found an early draft!
I’d like to see this booklet updated and posted as an ebooklet. What do you think?