Thursday we met Paul’s new neurologist. We were pleased that almost all of Paul’s records had made it to him, and we were even able to look at some of the internal pictures of his head and body. We are most certainly fearfully and wonderfully made!
But, of course, he encouraged more tests. So we were sent from the bright, colorful, cheerful children’s clinic to a hospital laboratory for yet another blood draw.
This was not a happy place at all. It was busy and noisy. The staff were trying to be pleasant but clearly were mostly trying to keep up. The lighting was dim and furniture was functional but not pretty. The worst part was the television – tuned to some artificially happy morning show that was shocking in its banality, with the volume turned up too loud. Dianne said she could feel evil in the room.
So, of course, God sent in some light.
Paul, unprompted, lifted his head off my shoulder and sings as loud as he can:
Jesus loves the little children!
All the children of the world!
Red and yellow, black and white, they are precious in his sight!
Jesus loves the little children of the world!
Then he laid his head back on my shoulder and giggled.
They are precious in His sight!
Thanks for this, John. I love the phrase, “sings as loud as he can.” He sets us a great example, doesn’t he?!
Also, that’s one more thing the new earth won’t have–dark, gloomy laboratories! PTL.
Steve
Beautiful! God is so timely!
How neat. I think hearing Paul sing with his beautiful clear on tune singing, is the greatest. What a blessing.
Thanks for sharing this story John. We have been in a very similar blood lab. Oh how we could have used Paul there to sing for us.
Reminds me of oodles of times our Will would look at a doctor or nurse or technician or someone else in a lab coat and ask, “Do you believe in God?” 🙂
There is a piercing reality to our kids with special needs that one wouldn’t trade for a few million bucks!
(and the follow up conversations get all the more interesting as he gets older!)
I have just found your blog today and I cannot stop reading. You have put into words my exact thoughts and feelings and have also answered some biblical questions I have had regarding disabilities. I have just finished an inductive study on the first chapters of Genesis and it has totally changed my view of where disabilities come from. God created my boy as he is for purpose and I cling to John 9 and have for the past 3 years of his life.
I am the mother of a 6 year old who is totally blind since birth, intellectually disabled, epileptic, autistic, who can’t sleep well, and doesn’t want to ever eat. It is amazing… the similarities between our children given how rare they are. I have never met anyone facing such a similar situation and I find your blog very comforting and validating. I am constantly fighting off my sinful nature in regards to feeling isolated, guilty, pity-filled, and resentful. Thank you for giving such a biblically-centered voice to these issues concerning families such as ours. I thank God for ministering through you!
Jennifer White