A week ago, Paul quietly sat with his mom during the worship service, causing no disruption or disturbance to anyone. And my heart ached for him.
This week, he didn’t make it through two minutes before I knew his behavior would disturb and annoy potentially most of the congregation. And I happily took him out.
Does that seem backward to you?
Last week Paul suffered a seizure before the Saturday evening service. He was quiet because his mind and his body were exhausted.
This Saturday evening he had gone seven days without a seizure and his regular personality was emerging. His multiple disabilities give him no idea that his happy sounds might be inappropriate or might annoy others.
So, though I was a little disappointed I couldn’t stay in the sanctuary, my heart was not heavy as I took him out to sit with the other families of wiggly ones, just outside the sanctuary.
And I rejoiced to God at the ‘bad’ behaviors of my happy boy.
Oh..I can relate to this post! Glad to hear this past week has been seizure free.
I also can relate! My 3 year old daughter had her first seizure one month ago today and it then progressed into “Status Epilepticus”. She was unconscious for 4 days and when she awoke, she was quite the different girl. She was in the hospital for 2 weeks and now we are home. She has some right sided weakness and is not using her right arm/hand yet. We pray that it improves. She also is less “feisty”. Others may think that is a blessing, but it just isn’t “her”. But she is slowly getting more vocal (yelling or protesting) and it makes us smile!