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Burk Parsons is the editor of Tabletalk Magazine, produced by Ligonier Ministries.  This quote is taken from his recent article, Death, Disease and the Gospel:

Because of the unrelenting nature of death and disease, we might be tempted to try to run from death and hide from disease while striving with all our might never to think on such matters. But in doing so our striving would not only be vain but sinful. Just as the Puritans spoke of dying well, so we need to be reminded that it is not a question of if and when we will die, but how we will die and how we will cope with the daily realities of death and disease — will we stand and shake our fists at God in bitter anger or will we kneel in prayer and in humble dependence on our Lord and on the promises of the gospel of Jesus Christ by the sustaining power of the Holy Spirit, glorifying God and enjoying Him now and at the hour of our death? For the Lord gives, and the Lord takes away — blessed be the name of the Lord (Job 1).

You can read the entire article from Ligonier’s website here.

Is it wrong?

Since I was asked to write a weekly blog posting for Desiring God, some interesting emails have come into the office.  I haven’t been able to respond to all of them, but I received one that was so serious I decided I needed to attempt a response, even though I think it was ‘above my pay scale.’

I am trusting that God gave me something, but the question still makes my heart race and palms moist.

In essence, the emailer asked if he was wrong to ask his family to withhold food from him if he became incapacitated sometime in the future.

What would you say to that question?

Here is my attempt at an answer:

As long as you let me speak solely for myself and not for Desiring God, I’ll take a try at a response.

There is a difference between end-of-life issues and issues related to lifelong disability, but I would suggest we be very careful in both cases.

And I strongly suggest that issues like this really need to be hashed out personally in the presence of other mature Christians, with Bibles open and a humble desire to pray for and receive God’s wisdom.

But I do want to raise a caution.

As you can probably tell from my recent posts, I am very concerned about our culture’s view of people with disabilities as represented in the rate of abortion of children identified with disabilities in the womb.  But we see echoes of that thinking elsewhere – even in your own statement about not wanting to live if you can’t feed yourself.  I’m assuming you mean that you are so incapacitated that you cannot perform any duties that right now are important to your functioning – feeding, toileting, communicating, living independently, etc.

Does (being incapacitated) make you less human?  Does that make boys like my son less human to you?

My guess is that you would answer ‘no’ immediately to the second question but might pause before answering the first.  I pause as well – I’m as American, middle-class, and independent as you probably are, which means even the thought of being incapacitated is revolting.

But our lives are not our own.  The classic Biblical text used to address abortion is Psalm 139:13-15, but if we continue to verse 16 we see this:

Your eyes saw my unformed substance; in your book were written, every one of them, the days that were formed for me, when as yet there was none of them. (Psalm 139:16 ESV)
God himself knows our days, even the days ahead that would frighten us because of things like loss of capacity.  Do we believe he is sovereign over those days as well?  Do we believe he will help us in those days?

And in 1 Corinthians we see this:

Or do you not know that your body is a temple of the Holy Spirit within you, whom you have from God? You are not your own, for you were bought with a price. So glorify God in your body. (1 Corinthians 6:19-20 ESV)

So, asking our families to withhold what is natural to our existence – such as food and water – rather than being a helpful thing for yourself or your family could be an expression of sinful self-determination.  It could also rob them of a life-changing opportunity to love and care for you, trusting God to supply all their needs and make much of Jesus in the midst of really hard circumstances.

Dementia is a horrible thing, as is cancer, blindness, and autism.  The creation is groaning.  Yet, God is sovereign over all things – and we can make Jesus look even more beautiful as we wait:

For I consider that the sufferings of this present time are not worth comparing with the glory that is to be revealed to us. For the creation waits with eager longing for the revealing of the sons of God. For the creation was subjected to futility, not willingly, but because of him who subjected it, in hope that the creation itself will be set free from its bondage to corruption and obtain the freedom of the glory of the children of God. For we know that the whole creation has been groaning together in the pains of childbirth until now. And not only the creation, but we ourselves, who have the firstfruits of the Spirit, groan inwardly as we wait eagerly for adoption as sons, the redemption of our bodies. For in this hope we were saved. Now hope that is seen is not hope. For who hopes for what he sees? But if we hope for what we do not see, we wait for it with patience. (Romans 8:18-25 ESV)

We haven’t met personally, and I know what I’ve written could come off as arrogant and judgmental.  I pray it doesn’t land on you like that but rather as one brother to another who wants to understand this life in light of the Word of God.  These are tremendously important questions.

Someday, we will both see clearly!  May Jesus come back soon!

John

Our friends, Jan and Mark Lacher, received a new diagnosis for their youngest son recently: Lennox-Gastaut Syndrome.  It is a catastrophic epilepsy with no cure.

Here is a portion of their email, which I am using with Jan’s permission.  Please read it – especially linger over the last paragraph – and marvel at God’s sustaining power in the midst of extraordinary pain:

This diagnosis was difficult to hear.  Even though it is just a label, there is much sorrow in it.  It is difficult to see Michael with his disabilities in ways that other people see him.  I am much more aware of his disabilities when I am out of my home.  I tend to respond to how others respond to Michael and have a heightened awareness of his weaknesses.  That is one of the reasons leaving the home with him is so difficult.  There has to be a great deal of courage to do so.

Typically, when I look at Michael, I really don’t see a person with disabilities.  With great affection,  I see  “Michael–the Fox”–as a person. He can’t do what others can, but he does have a charm about him that is unique to him.  He can be mischievous as many of you have witnessed when he unexpectedly knocks a cup or plate out of your hand; he experiences pure pleasure when eating chocolate pudding or an ice cream sandwich as exemplified by his “mmmm” with each bite; he displays his affection as he rests his head on my shoulder or taps his foot on my thigh; and he belly-laughs when Mark “wrestles” him on the mat.  He seems to recognize my greeting every morning of “this is the day the Lord has made; we will rejoice and be glad in it.”  I am beginning to think that achievement is over-rated!

Every day for us continues to be a walk of faith in our Lord–one that looks to Him for what we need–for the strength, for the courage, for the hope, and for the grace to go forward, one step at a time, one day at a time, and frequently, one minute at a time.  The unrelenting nature of Michael’s situation is daunting, but God promises to work this out for our good–to those of us who love Him and are called according to His purpose. (Romans 8:28)  We know that God’s Word is always, always, always, true.  He never will contradict Himself.  It is not in His nature to do so.   He can be trusted even though we do not understand all that He does.  We rest in that promise.

We welcome any prayers said on our behalf.

Jan L

Please join me in praying for this dear family.

As God has done many times for me, I was confronted by two contrasting views of God’s sovereignty over just a few hours.  One view was in a memoir by a parent about her child with disabilities; the other was an email from a dear family.

The memoir includes all the things we parents of children with disabilities understand: shock, anger, despair, contemplation, surprise, delight.  But there is a lingering assertion throughout: God, explain yourself in ways that make sense to how I want you to be.

The email from our friends came with news about a new and difficult diagnosis for their child. The options are limited; the side effects of some medications are incredibly hard to bear.  And there was a strong affirmation throughout: God, you are who you say you are, and we trust you.

The contrast was good for me.  One thought hard about experiences.  The other thought hard about scripture, and interpreted the experience in light of God’s word.

There are many things God chooses not to reveal.  But he did reveal the most important thing, the most beautiful thing, the most necessary thing – Jesus.  What God reveals in his word and when he grants us faith in Jesus, we know his goodness and love and mercy and wrath and kindness are so certain we can join with Paul in proclaiming:

Oh, the depth of the riches and wisdom and knowledge of God! How unsearchable are his judgments and how inscrutable his ways!

“For who has known the mind of the Lord,
or who has been his counselor?”
“Or who has given a gift to him
that he might be repaid?”

For from him and through him and to him are all things. To him be glory forever. Amen.

(Romans 11:33-36 ESV)

I deeply appreciate Ray Ortland’s blog; he marries beautiful paintings and pictures with words of truth.

His blog yesterday, Sight or blindness?, included an image I actually didn’t like all that much – which is unusual – but the text made me stop to worship!

I’ve included it here in its entirety:

“The prophecies, the very miracles and proofs of our religion, are not of such a nature that they can be said to be absolutely convincing.  But they are also of such a kind that it cannot be said that it is unreasonable to believe them.  Thus there is both evidence and obscurity to enlighten some and confuse others.”

Pascal, Pensées, 8.564.

The Bible is closed to those who are blind, and there are none so blind as those confident in their own understanding.  The Bible is open to those are are open, and there are none so open as those desperate in their need.

To the former, the Bible will be constantly offering up further evidences against itself, and they gloat over it.  To the latter, the Bible will be constantly offering up further evidences against themselves, but they don’t mind, because they see their Savior too.

In both cases, how people experience the Bible reveals the truth about themselves.  But no one defeats the Bible.

Both videos can also be seen by clicking here and here.

Since it made the list of upcoming events in the Desiring God National Conference booklet, I’m assuming its ok to make this public!

Lord willing, on November 8, 2012 Desiring God will be hosting a one-day conference on the Bible and disability.

Please be in prayer about all the preparations that must be made.

More than anything, we want this to make much of God – that he is both sovereign AND good over disability, that there is lasting joy in treasuring Jesus above good but tempoary things like health or physical ability, and that we can trust him who made us and who has numbered our days.

More details will be coming over the next several months.

When Christ is so precious and so satisfying to you that you can count all other things as rubbish by comparison, then weaknesses and insults and hardships and persecutions and calamities cannot touch the core of your contentment.

John Piper, speaking to Desiring God’s Philippian Fellowship, September 23, 2011

Thank you to Jan Lacher for pointing me to this article by Elizabeth Elliot.

I deeply appreciate Elizabeth Elliot, and this article written in 1989, There Are No Accidents, Says Judy, just adds to my regard for her.  She is writing and quoting her friend, Judy Squier, a woman born without legs.

Some of the words in this article would be considered old-fashioned, but it is worth reading.  It is also very short!

Here’s a sample:

What we judge to be ‘tragic – the most dreaded thing that could happen,’ I expect we’ll one day see as the awesome reason for the beauty and uniqueness of our life and our family.

On Friday we’re welcoming about 3,000 people to the Minneapolis Convention Center for the Desiring God National Conference.

The topic is on missions – this is a massively important conference!

There are hundreds of millions of people around the world who are disabled – when we add in their families and caretakers, the numbers of people impacted by disability easily exceeds a billion people.

Every culture, every ethnicity, every economic strata, every geo-political entity experiences disability.

They need to know about Jesus and the real God of the Bible.  And they need to know that the health, wealth and prosperity ‘gospel’ is a lie – disability is no sign of disfavor from God nor are they ‘lacking’ faith if God calls them to live with it their entire lives.

As Pastor John has said:

There are only three kinds of Christians when it comes to world missions: zealous goers, zealous senders, and disobedient. May God deliver us from disobedience!

Please pray that God would help everyone at this conference to see him more clearly and understand their role in missions, for his glory and for our good.