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I received this encouraging text from Jan Lacher yesterday:

Last week, Michael’s team leader approached me and said that all the leadership in Connection (Connection is the Wednesday evening service) want Michael in his class no matter how noisy he is.   I took him out at one point because he was extremely loud.  She said that when I gave my little talk to the class in the fall in what to expect with Michael, to know that when he is loud, that is just Michael and to focus on their teacher all the more.  And that is what those kids were doing-focusing on their teacher. The kids weren’t bothered at all with Michael’s loudness.  The team had a meeting after that class and everyone agreed that they want Michael there.

Two great things I took away from this:

  1. Jan and Mark have kept showing up at church with Michael, investing not just in Michael but in all the people who interact with him at church.  It isn’t easy to persevere like that.
  2. The adults have trusted God for ways to serve Michael and all the other children, and worked hard to include him. It isn’t easy to persevere like that, either.

But the result is wonderful! God has helped those children learn how to persevere through his noisiness because it means Michael gets to stay in his community of peers.  He belongs.

 Finally, all of you, have unity of mind, sympathy, brotherly love, a tender heart, and a humble mind. (1 Peter 3:8 ESV)

I’ve been blessed to have several men who have invested in me and encouraged me over and over again.  But this blog post from Justin Taylor reminded me that I’ve also been blessed by people who did one thing out of love that made a difference:  Preaching the Gospel with a Passion for Particular People

Trilla Newbell has become a regular contributor to the Desiring God blog, and one I look forward to reading.  On Thursday, she delivered a powerful statement about hope in suffering:

I can rejoice in suffering because I know I have a living hope. I know that my hope will bring me to an eternal glory. I will one day rise and be with Christ forever. I can rejoice in suffering today because I know that suffering produces endurance, and endurance produces character, and character produces hope, and hope does not put me to shame, because God’s love has been poured into my heart through the Holy Spirit who has been given to me (Romans 5:3–5).

I read every comment that is posted.  Though I don’t respond to every one, I am grateful for the time people spend in commenting.

And that was particularly true this past week, when I posted on a Daily Mail article.

A brother and sister in Christ who are involved in healthcare in the UK posted comments challenging my assertions based on their actual experiences.

First a portion of the comments from Andrew:

I am a Doctor in the UK. I am also passionately in love with Jesus.

The Daily Mail articles on this subject have been one sided and inaccurate. I have worked with this so-called death pathway for the last few years. It is not at all designed to remove “difficult” patients or to starve patients we no longer feel are worthy of life.

And this from Beckie:

I was rather disappointed that you ran, and are still linking to, this post. The reason for this, is I don’t think you have all the facts. I am a British healthcare worker who has struggled with the newspaper’s constant lies about The Liverpool Care Pathway. (For full disclosure I work with adults) The articles they have been running this year, including this latest one seem designed to destroy a pathway that actually allows us to love and care for dying people. . .

You can read their entire comments at the original post.

I have two primary reasons why I appreciated their comments:

1) This is an important and highly emotional issue. Getting information directly from other sources is helpful.

2) They were addressing the argument and not attacking me.  Kindness goes a long way toward helping me listen for understanding.  But they also didn’t shy away from expressing clearly what they have observed.  That is a precious and helpful thing they did in practicing care in disagreeing and guiding toward clarity, especially in a public blog.

I’m still concerned about what is happening in US healthcare, especially in the emerging technologies and recommendations to search for children with disabilities in the womb – we know how that ends, statistically. And I’ve read just enough to know that there are people who are concerned about the Liverpool Care Pathway.

But these friends in the UK have shown there are Christians on the inside who see positive things about it, and care should be taken in understanding it, more care than I gave it this past week.  I’m grateful for both what and how they commented.

Therefore encourage one another and build one another up, just as you are doing.  (1 Thessalonians 5:11 ESV)

Do not think, because you experience adversity, that the hand of the Lord is shortened. It is not our prosperity but our holiness that he seeks with all his heart. And to that end, he rules the whole world. As Proverbs 21:1 says, “The king’s heart is a stream of water in the hand of the Lord; he turns it wherever he will.”

He is a big God for little people, and we have great cause to rejoice that, unbeknownst to them, all the kings and presidents and premiers and chancellors of the world follow the sovereign decrees of our Father in heaven, that we, the children, might be conformed to the image of his Son, Jesus Christ.

John Piper, Good News of Great Joy: Daily Readings for Advent, p. 8.

This is a great set of short readings for every day of Advent and is available for free download at Desiring God.  You can still make this season of Advent special in your family!  I highly recommend it.

Crossway and Desiring God did a wonderful video of Pastor John reading The Innkeeper.  This book is very precious to me, and this reading is beautiful.

The story is very hard, as life can be.  It is important to watch it to the very end.

And, yes, I think I find extra pleasure that this story includes a person with a disability, though how he became disabled is horrifying.

From Pastor John’s blog posting on The Innkeeper:

In the poem called The Innkeeper, I tried to imagine what might have happened when the soldiers came. And what Jesus might have said if he showed up 30 years later to talk to the innkeeper about it. It’s fiction. But its aim is truth and hope and joy.

Desiring God and Crossway Books have teamed up to make a new video recording of my reading of this poem. We hope it will touch some deep place in your heart, perhaps through a wound.

Update: Thankfully, the United States Senate DID NOT ratify the Convention on a vote of 61 – 38.  It required 67 votes for passage.  Here is a news story from CBS on the vote.

On Tuesday the United States Senate will once again be considering the United Nations Convention on the Rights of Persons with Disabilities.  As with any treaty, 2/3rds of the Senate are required for passage.

I am hoping they will vote against the Convention.

As I wrote in July, there are articles within this Convention that are noble and worthwhile, like article 10:

States Parties reaffirm that every human being has the inherent right to life and shall take all necessary measures to ensure its effective enjoyment by persons with disabilities on an equal basis with others.

Unfortunately, the United Nations as a body cannot be trusted to enforce language like that, especially for unborn human beings with disabilities.

As recently as this past September, the Center for Reproductive Rights, an organization committed to expanding abortion around the world, submitted a scathing letter to the United Nations Human Rights Committee against the Philippines position on restricting abortion, using the Human Rights Committee’s own rulings. In fact, they documented that the Human Rights Committee found that one instance of a girl being ‘forced’ to bear her child with a fetal anomaly constituted “cruel, inhuman, and degrading treatment.” The Human Rights Committee also found that Peru violated a “right to privacy” when abortion was not easily accessible for reasons of fetal anomaly.  There is no evidence to show the United Nations would proactively support the rights of unborn children with disabilities in any instance.

The list of nations who have signed the Convention is also troubling. Chen Guangcheng, who fled China after years of house arrest for seeking to protect women from forced abortions, recently released this devastating video on human rights violations in China.  Yet China is one of the proud signatories of the Convention, along with Mali and Iran among others.

The United Nations simply does not have the moral standing to justify the trust of the United States people on this Convention.

Further, the arguments in favor of the Convention make no sense:

  1. For the sake of US global leadership on this issue.  The United States is already a global leader on issues of disability with the passage of the Americans with Disabilities Act.  Signing the Convention does not impact the United States’ standing on this issue at all, and may even weaken it as it brings the United States under another sovereign body.
  2. For the sake of Americans living and traveling in other nations. As stated above, the United Nations has accepted the ratification from nations that routinely violate human rights.  The United States is in a better position to protect the rights and safety of American citizens than is the United Nations.
  3. For sake of a level playing field for US business/investment interests.  Is there even one example where the United Nations has played such a role?

Some even argue that it doesn’t actually obligate the United States to do anything.  The United Nations’ own website on the Convention clearly states that it does create obligations for states that ratify this treaty.

To be sure, the United States does not have a great record with regards to disability.  The abortion rate is sickeningly high and our culture routinely denigrates people with disabilities.  However, the Convention would address neither as the United Nations cares nothing about the former and can do nothing about the latter.

Pray it doesn’t pass the United States Senate.  And contact your senators to express your view.  You can do so through the United States Senate website.

God has specifically warned against abusing those who live with disability, even reminding us who we should fear:

You shall not curse the deaf or put a stumbling block before the blind, but you shall fear your God: I am the LORD. (Leviticus 19:14 ESV)

Those who kill smaller human beings who are disabled or sick, those unborn or newly born, through active means like surgical instruments or passive means like starving them to death, all share one characteristic: they are stronger than the human beings they are killing.

We need to warn them.  God sees everything:

The LORD looks down from heaven;
he sees all the children of man;
from where he sits enthroned he looks out
on all the inhabitants of the earth,
he who fashions the hearts of them all
and observes all their deeds.
(Psalm 33:13-15 ESV)

In this Advent season, we can be lulled into thinking of Jesus in limited ways. Pastor Jason pointed out yesterday that the picture of a cute, helpless little baby in a manger is grossly inadequate.  He is the King of kings and Lord of Lords, and there is more to him than just mercy:

I see him, but not now;
I behold him, but not near:
a star shall come out of Jacob,
and a scepter shall rise out of Israel;
it shall crush the forehead of Moab
and break down all the sons of Sheth.
(Numbers 24:17 ESV)

In fact, he is so fearsome that the strong and powerful will hope to be crushed by mountains rather than face him:

Then the kings of the earth and the great ones and the generals and the rich and the powerful, and everyone, slave and free, hid themselves in the caves and among the rocks of the mountains, calling to the mountains and rocks, “Fall on us and hide us from the face of him who is seated on the throne, and from the wrath of the Lamb, for the great day of their wrath has come, and who can stand?”  (Revelation 6:15-17 ESV)

He is coming. Every evil done to every child with a disability will end.  We must warn them, and ask God to give us a heart to do so.

Or at least I need to ask God to do so in my heart, because warning isn’t usually my thought for people who kill and abuse our children.

The news story from the United Kingdom-based Daily Mail Online was horrifying.  The headline says it all: Now sick babies go on death pathway: Doctor’s haunting testimony reveals how children are put on end-of-life plan. (I’m sorry I don’t feel I can link to the story given the other ‘content’ on the site).

I tried to find the article from the British Medical Journal that prompted the Daily Mail article, but it isn’t available online. The comments are, however, including one from Dr. Laura de Rooy, consulting neonatologist at St. George’s hospital who was also quoted in the Mail Online article.

First, her quote from the Mail Online article:

In a response to the article, Dr Laura de Rooy, a consultant neonatologist at St George’s Hospital NHS Trust in London writing on the BMJ website, said: ‘It is a huge supposition to think they do not feel hunger or thirst.’

This is her actual response to the original British Medical Journal article.  Emphases in bold are mine:

I read with interest the recent BMJ article entitled: ‘How it feels to withdraw feeding from a newborn baby.’ Although I appreciate that this is an interesting and poignant reflection, I do not believe that the piece represents current practice in the UK, or aligns the case to current UK guidance.

The article references the American and Canadian guidance on the subject, which indeed suggests that it may be ethically appropriate to withdraw feed and fluids under certain carefully delineated conditions. It is interesting to note that the research underpinning this guidance mostly relates to adults, and refers to a lack of hunger and thirst in those who are approaching death. It would be extremely difficult to assume that babies who are facing death because of congenital abnormalities are similar to cachectic adults dying from cancer. It is a huge supposition to think that such infants do not feel hunger, or thirst.

If Dr. de Rooy is correct, then it is not standard practice in the UK.  We have no way to corroborate the assertion by the anonymous doctor that he has overseen the death of 10 children.  I also have no doubt that some doctors in the UK are practicing illegal euthanasia on disabled and sick children in the UK.  And even if it is ‘only’ one child, it must be exposed.

But it was the journal of the American Academy of Pediatrics that had this statement in 2009 about American hospitals (emphasis in bold is mine):

Decisions to withhold or withdraw life-sustaining treatment from critically or terminally ill children are commonly made in US and Canadian hospitals.

Diekema DS, Botkin JR. Committee on Bioethics. Clinical report- foregoing medically provided nutrition and hydration in children. Pediatrics 2009;124:813-22.

To be fair, the article from Pediatrics is focusing on fairly narrow categories of disability and not all critically or terminally ill children.  But that decisions ‘are commonly made’ is still troubling.

Many of the comments I’ve read on the Daily Mail Online article are predicting this is what will happen to healthcare in the United States under what is known as Obamacare.

Unfortunately, I think it is just as likely that we’re emulating what happened after World War II.  As a country we condemned the horrible eugenic policies of Nazi Germany that resulted in the Holocaust, and neglected to note that the Nazis were taking their ideology and practices from the United States.  This time, let us link arms with our brothers and sisters in the pro-life movement in the UK to condemn such practices here and there.

This was a great article and video on an emerging technology that allows people with paralysis to walk!  I’ve started the video below at the point where a man who has been paralyzed for 20 years due to an accident demonstrates this technology by walking independently:

Four observations:

1. I’m really glad there are people working on things like this! Who knows how many people will be helped in the future?

2. If you watch the entire 16 minutes, you will hear it described as amazing, incredible, wondrous and miraculous. In the barrage of information coming at us, it is nice to see that even secular news outlets can be (or at least act) amazed about something.

3. It increases the wonder I feel at the miracles of Jesus!  This technology is great, but it took years of study, experimentation and production before it came to reality and is still limited in what it can do.  Here’s how Jesus helped people:

•   Jesus said to him, “Get up, take up your bed, and walk.” And at once the man was healed, and he took up his bed and walked. Now that day was the Sabbath. (John 5:8-9 ESV)

•   “I say to you, rise, pick up your bed, and go home.” And he rose and immediately picked up his bed and went out before them all. . . (Mark 2:11-12 ESV)

Jesus needed no technology, the paralysis was gone, and it happened immediately.  Now that’s miraculous!

4. Most of us won’t experience that complete physical healing in this age, so the common grace of new technology is really helpful and also brings glory to God.  But someday, Jesus is going to do something permanent and glorious about every hurt:

And I heard a loud voice from the throne saying, “Behold, the dwelling place of God is with man. He will dwell with them, and they will be his people, and God himself will be with them as their God. He will wipe away every tear from their eyes, and death shall be no more, neither shall there be mourning, nor crying, nor pain anymore, for the former things have passed away.”

And he who was seated on the throne said, “Behold, I am making all things new.” Also he said, “Write this down, for these words are trustworthy and true.”  (Revelation 21:3-5 ESV)

I love Jordon Kauflin’s modern hymn, All I Have Is Christ.  I’ve been surrounded by it lately, including during our staff devotions on Thursday.

I’m encouraged every time I hear it or sing it – he looked upon my helpless state! He suffered in my place!

And that makes this declaration hopeful rather than terrifying: oh Father, use my ransomed life in any way you choose.

We know that God chooses the path of suffering; we’ve lived it.  Yet, having Christ, who suffered and died for us, puts it in its proper perspective:

For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison. . . (2 Corinthians 4:17 ESV) 

It is available as a free download through Desiring God:  All I Have Is Christ – Free Download.

Sovereign Grace, who provided this free download, also produced this short video of men singing at Together for the Gospel.  I love the sight and sound of these thousands of men joining together in praise!  May we dads of children with disabilities do the same, with joy and expectation that God is who he tells us he is in his word.