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Dr. Brian Skotko, a Down syndrome specialist at Children’s Hospital Boston, cites a study in the article, New earlier blood test for Down syndrome pregnancies may bring women comfort — or conflict, that “the number of Down syndrome births in the nation dropped 11 percent between 1989 and 2006, a time when it would otherwise be expected to rise 42 percent.”

That statistic has been bothering me all week, so I tried to do the math.  Since I don’t know what the actual numbers are, I tried to figure out the ratio.  If, for example, in 1989 we had 100 Down syndrome births, then we expected that in 2006 we would have 142 Down syndrome births (42% increase).  Instead, we had 89 Down syndrome births (11% decrease).

89(actual)/142 (predicted) = 62.7%

Only 62.7% of the children with Down syndrome that we anticipated would be born in 2006 were actually born.

I looked up some numbers on the Jewish population worldwide before and after the Holocaust:

1939:  17 million

1945: 11 million

The ratio of 11 million (actual living)/17 million (expected but for the Holocaust): 64.7%

Of course, the ratio in Europe was even worse – only about 1/3 of Jews living in Europe survived the Holocaust.

If the systematic identification and destruction of 2/3rds of Jewish people in Europe was called genocide, what do we call an abortion rate of more than 90% of children with Down syndrome for those women who currently are tested?  How much lower will the ratio of Down syndrome births go as new, more accurate and less expensive tests for Down syndrome become available?

I want to be clear – I do not believe that tests are the problem.  Though knowledge of a disability in an unborn child is certainly a hard thing, it is not a bad thing.

But we know our culture has a bias against those who are different, and particularly against those who have developmental disabilities.  We also know, and Dr. Skotko referenced it in the article above, that doctors are not trained in the full reality of disability and usually bring in their own biases.  Abortion is an assumed best option for many, many health professionals at a very vulnerable time in a mother’s and a father’s life.

So, let us tell and re-tell our stories of God’s goodness and provision in our lives.  Whether a person living with a disability or the parent of a child with a disability, we have a particular kind of testimony of God’s faithfulness and goodness.

And then let us pray that God will use our stories to change everyone – presidents and Supreme Court justices and members of Congress and doctors and pastors and genetic counselors and family members and mothers and fathers and everyone else.  We know God can do it!

The king’s heart is a stream of water in the hand of the Lord; he turns it wherever he will.  Proverbs 21:1

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If we say it, let’s mean it.

Everyone wants some advice on how to help people who are sick and suffering.

In his article, You Look Great and Other Lies, Bruce Feiler offers some pretty good advice on things to say.  He also offers a few NOT to say, like “everything will be ok” or “you look great.”

But one of the phrases he suggested people avoid made my heart sick:

MY THOUGHTS AND PRAYERS ARE WITH YOU. In my experience, some people think about you, which is nice. Others pray for you, which is equally comforting. But the majority of people who say they’re sending “thoughts and prayers” are just falling back on a mindless cliché. It’s time to retire this hackneyed expression to the final resting place of platitudes, alongside “I’m stepping down to spend more time with my family,” or “It’s not you, it’s me.”

Attaching the words ‘prayer’ and ‘mindless cliche’ just hurts.  He is probably right that most people should avoid that statement because they either have no intention of following through or they have no thought that prayer actually means anything.

Let us not be those kind of people!  If we say we will pray, let us pray, and do so with expectation.

The prayer of a righteous person has great power as it is working. James 5:16b

And when people say their ‘thoughts and prayers’ are with us, let us accept it enthusiastically, thanking them for going before the Father and Creator of all things, with joy that they love us this much!  If they said it mindlessly or carelessly, may God use our excitement at prayer to shake them up and reconsider the power available to all who cling to Jesus – we can come to the throne of God himself, boldly!

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If you haven’t seen this great article from Sunday’s Pioneer Press, A different kind of perfect: Child with Down syndrome helped family re-evaluate life, please stop and read that first.

I loved how an eight-year-old boy helped his mother see the truth in the midst of her grief about the news that her unborn child had Down syndrome.

As he received the news, this boy simply said, “Oh, good.”

His mother is quoted as saying,

In that moment of absolute grief, that little piece of clarity and truth, it took my breath away.

Clarity and truth tend to do that!

So, this family faced the reality of their situation, which included advice about options like abortion.  They heard from family members and friends who left unspoken the expectation that their other children would have their lives ruined by this little, vulnerable, unborn child with Down syndrome.

And today this family lives what appears to be a complicated, joyful life.  The future is unclear, but they know it will probably get more difficult for them and for their youngest son.

But that clarity has remained about the life of their precious Gabe.

And it began with a little boy who knew something important about his unborn brother.  There are people who do not see individuals with Down syndrome with that level of clarity, even though they are much older than this boy was, are more educated, and have earned impressive credentials.

And it is just like God to do it that way:

At that time Jesus declared, “I thank you, Father, Lord of heaven and earth, that you have hidden these things from the wise and understanding and revealed them to little children; yes, Father, for such was your gracious will.”  Matthew 11:25-26

I’m very grateful to God for this positive article about parenting and Down syndrome – these things do help!  And I feel the call to be like that boy, to speak truth with clarity and conviction and certainty.

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Both the Saint Paul and Minneapolis papers ran an identical story on June 5 related to new prenatal tests on the genetic makeup of pre-born children:  New earlier blood test for Down syndrome pregnancies may bring women comfort — or conflict.

The ramifications of what is presented in this article are huge for parents and churches and society at large.

But this article highlighted something really delightful: a woman passionately committed to her baby.

Witkowski, who prayed as that needle was slipped into her swollen belly in 2009, got her answer: It was Down syndrome. As her doctor gave her the news, her baby kicked her and “I could see my belly move,” she recalled.

Her doctor started talking immediately about abortion, a step Witkowski rejected. She changed doctors and gave birth to Grady in February 2010.

“When they first gave him to me,” Witkowski said, “I saw tiny little hands, and he had the most beautiful eyes… He didn’t have `Down syndrome’ stamped on his forehead. He cried and he peed and he pooped. He was a baby.”

New prenatal testing is getting cheaper and more widely available.  But it is not something to fear when we know that good decisions can be made, like in this case!  And those good decisions can be made even when those in authority, like doctors, are offering really, really bad alternatives.

There are those to whom we grant authority over us, like doctors and social workers and university professors and even some pastors, who are vocally against life with disability rather than for it.  That doctor, whether because of training or because of bias, immediately started talking about abortion because our society has turned against people with disabilities.

Was that doctor going to be as vocal about the humanity of that baby or about the entire possible spectrum of how that child’s life could turn out?  In addition to all of the struggles, and there will be many, are parents really being told the entire truth about their situation?  This article also notes that studies show doctors emphasize the negative ramifications of the diagnosis.

And who will tell these parents the truth about God’s sovereignty over all things and all circumstances?

Obviously this young mother knew something that doctor didn’t – she was carrying a baby, not ‘Down syndrome.’

May God be pleased to encourage many, many more who behave like Erin Witkowski of Port Jervis, N.Y.!

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Pastor John and I had the chance to sit down over three weeks to talk about disability, the Bible, the church and the glory of God.

Please pray that God would use it to encourage struggling parents and embolden churches.

Interview one

Interview two

Interview three

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One in six!

WebMD is reporting that one in six children in the United States have developmental disabilities, according to a study in the June issue of the journal, Pediatrics.

One in six!

I knew the number was growing, but that startled me.

Of course, developmental disabilities range all across the board.  Autism and ADHD, for example, are spectrum disorders that range from mild to severely disabling.  And I’d really like to see their survey instrument since they relied on parent reporting.  That’s no knock on parents (since I am one) but I know how easy it is for two different parents to report different things for the exact same condition – or report the same thing when conditions are remarkably different.  Alas, it hasn’t been released to the public yet.

Still, one in six!

That has some significant implications for churches seeking to serve families experiencing these types of disabilities.  And since many developmental disabilities can be hidden, Pastor John’s strong exhortation to ‘see disability!’ in our midst is even more relevant.  We will need to be really intentional to see and welcome the young people who live with developmental disabilities God has given as gifts to the church.

Let us pray, earnestly, for God to provide all that we need!

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This was a great story!

Kuk-kik, a 14-year-old boy, punctuates his few, slurred words with yelps. Kong screams and bites his fingers when he can’t figure out how much to pay for bananas. Other children freeze mid-motion, fix their gazes on minute objects and withdraw.

Enter Nua Un and Prathida — two gentle, lively and clever female elephants — and the mood among the autistic teenagers in Thailand changes as they begin their therapy, the world’s first using these charismatic animals.

Therapy elephants!  How fantastic is that!

Animals are wonderful therapy tools.  I’ve seen therapy dogs and therapy horses and therapy monkeys and even therapy llamas.  This is one of my favorite pictures of Paul as he has a little ‘equestrian therapy’:

(All of you parents know this isn’t ‘official’ therapy because he isn’t wearing all that ridiculous equipment.  As you can see, he is much happier this way.)

It made me think of this passage from Isaiah 11:

6 The wolf shall dwell with the lamb,
and the leopard shall lie down with the young goat,
and the calf and the lion and the fattened calf together;
and a little child shall lead them.
7 The cow and the bear shall graze;
their young shall lie down together;
and the lion shall eat straw like the ox.
8 The nursing child shall play over the hole of the cobra,
and the weaned child shall put his hand on the adder’s den.
They shall not hurt or destroy
in all my holy mountain;
for the earth shall be full of the knowledge of the Lord
as the waters cover the sea.

I know some Biblical scholars believe this isn’t speaking of literal animals but of nations represented by those animals.

But right now I’m thinking how exciting it will be if we really get to play with all the animals of God’s creation – because look at those kids living with the confounding condition of autism who get to play with elephants today!

Yes, elephants were created for the glory of God!

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I didn’t realize leprosy was anywhere in the United States until I read this article.

Then it came up yesterday in my Bible reading:

The Lord spoke to Moses, saying, “Command the people of Israel that they put out of the camp everyone who is leprous or has a discharge and everyone who is unclean through contact with the dead. . .” And the people of Israel did so, and put them outside the camp; as the Lord said to Moses, so the people of Israel did. Numbers 5:1-2, 4

Being forced outside the camp was a hard thing on everybody.

Maybe disability gives a little glimpse into what that was like.  Many of us live in a different kind of world than most of the people we know.  It is a world with a different vocabulary, full of educational and medical specialists and paperwork and expenses.

And suffering.

We live outside the camp of our culture.

It isn’t so bad.  It’s where Jesus is.

So Jesus also suffered outside the gate in order to sanctify the people through his own blood. Therefore let us go to him outside the camp and bear the reproach he endured. For here we have no lasting city, but we seek the city that is to come. Hebrews 13:12-14

Yes, it is worth it to live outside the camp with Jesus!

Pastor John helpfully looked at Hebrews at Together for the Gospel in 2008.  It is a longer message at just over an hour, and requires direct attention – don’t try to have this on in the background while you do something else.  It is worth it.

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The Sunday Saint Paul Pioneer Press included a story on a young man with disabilities who is taking part in an experimental treatment that includes the use of embryonic stem cells.

We knew this day was coming.  But this particular story was alarming because of how it positioned Christians against the interests of the embryonic person.

The young man suffered a severe injury in a car accident that left him paralyzed from the chest down.  From all accounts he is a young man who trusts Christ and attends church regularly.

But he and his pastor are using profoundly flawed logic to justify the use of embryonic stem cells in this young man’s treatment.

In summary:

The cells implanted into his spine were obtained from embryos being discarded at fertility clinics, he notes.

“It’s not life. It’s not like they’re coming from an aborted fetus or anything like that. They were going to be thrown away,” he said. “Once they explained to me where the stem cells were coming from, once I learned that, I was OK with it.”

His pastor, Troy Bailey, of  the Reynolds Holiness Church, came to the same conclusion:

Bailey realized he had to sort out his own stance, given that some people who, like him, oppose abortion also consider embryonic stem cell research to be immoral. But Bailey concluded that that he, too, believed the experimental treatment is acceptable because the cells were obtained from embryos that had never been implanted in a woman’s womb and so had no chance of developing into a fetus.

“I am adamantly against abortion in any form. It did cause me some searching and researching biblically what is the proper answer,” he said. “I don’t really see a baby’s life was destroyed for this to take place.”

‘Adamantly against abortion in any form,’ yet willing to use stem cells from embryos that were destroyed in the process.

It’s like one human being saying to another, “since I can’t save you, it’s ok for me to use you.”

The only difference between those embryos and an aborted baby is length of time in development and placement.  The fact that the embryos were going to be discarded does not change the moral question one bit: they are still human beings.

This paper from Joni & Friends explains that we are dealing with a human:

Neurobiologist Maureen Condic, Senior Fellow at the Westchester Institute for Ethics and the Human Person, has forcefully argued that based on universally accepted scientific criteria, the human zygote/embryo comes into existence at the moment of sperm/egg fusion, an event that occurs in less than a second. Upon formation, the zygote immediately initiates a complex sequence of events that establish the conditions required for embryo development. The behavior of a zygote is radically unlike that of either sperm or egg and is characteristic of a human organism.

Like you, I want a cure for disabilities like what this young man is experiencing, but not at the expense of the very lives of other human beings.  The fact that fertility clinics have hundreds of thousands of frozen embryos is a huge and vexing problem.  But a clinic’s callous destruction of embryos does not change the morality of embryonic stem cell research or their use in other people.

The reporter for this story noted this irony:

Atchison’s story reveals provocative insights into one of the most closely watched medical experiments, including what some may see as an irony: that a treatment condemned on moral and religious grounds is viewed by the first person to pioneer the therapy, and his family, as part of God’s plan.

“It wasn’t just luck, or chance,” said Atchison, who thinks, six months after the treatment, that he may be feeling the first signs that the cells are helping him.

“It was meant to be.”

He is right – it isn’t luck or chance.  God is always purposeful.  And the temptations to seek out any rescue from his disabling condition will be strong.  Very few people in this culture will think twice about the decision he made and won’t mind that he’s wrapped it in religious language.

But we must stand ready to trust that God has a better plan that does not require the destruction of smaller human beings to change our life circumstances.  We must demonstrate that God is greater, more valuable, and more beautiful than comfort in this present age.  We must not let the clear evidence of humanity be clouded by the circumstances of their destruction.  We must support those who have made the harder, deeply personal decision to not participate in embryonic stem cell experiments, like Joni herself:

I want people to know that not all Americans with disabilities believe in using human embryos.

And when pastors make poor decisions, we must respectfully yet persistently call them back to the Bible to study it more carefully.  We must, peacefully, continue to stand for the little ones who cannot speak for themselves.  And we must be more proactive in serving and being served in our churches by those who live with life-long disabling conditions.

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Dianne and I had the pleasure of attending the Doing the Right Thing Tour stop at Wooddale Church this past Saturday.  Chuck Colson was the headliner for a group that included Dr. Timothy George of Beeson Divinity School, John Stonestreet of Summit Ministries, and Steven C. Tourek of The Marvin Companies.

Among the speakers, however, Dr. Scott Rae, Chair, Philosophy of Religion and Ethics at Biola University, was the highlight for me as he spoke directly and passionately on the value of human life, along with the challenges facing both the unborn and the very elderly in our present culture.

But the overall highlight of the conference came between the first and second halves of the conference.  Dianne and I sat near the front and observed Chuck Colson talking with a very elderly man, giving him direct, special attention in the midst of a sea of people.  Dianne commented that she wanted to cry, it was so moving to see him honor this old saint.

I’ve read Breakpoint for a long time, and have known about Prison Fellowship for even longer.  His public statements on the inherent dignity and value of human life are well known.

On Saturday I got an up-close view that he really means it.

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