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Archive for the ‘News’ Category

Helpful, but not the answer

Thank you to @snappin_min who pointed me to @lovethatmax who linked to a study that was just released by the American Journal of Medical Genetics.

Brian Skotko has made his career working with families and children dealing with Down syndrome, and I’m very glad he has.  Once again, he has partnered with other researchers looking at various medical, social and cultural issues related to Down syndrome.  This time he and his collaborators were looking at the quality of life in families with a child who has Down syndrome.  Their findings are encouraging and have been reported in the article, “Having a son or daughter with Down syndrome: Perspectives from mothers and fathers.”  (Kudos to the American Journal of Medical Genetics for making this article available online for free!)

  • 99% reported loving their child with Down syndrome.
  • 79% report their outlook on life is more positive because of their child with Down syndrome.
  • Only 11% reported the child with Down syndrome was putting a strain on the marriage – exactly the same number who reported their children without Down syndrome were straining a marriage.

Articles like this are so important because women frequently report a negative bias on the part of their health providers when a diagnosis is first made.  Abortion is frequently anticipated by medical professionals before a conversation has even begun.  Expectant mothers are too frequently told the worst case scenario rather than given a fully-informed view based on the actual experiences of families who have a child with Down syndrome.

Dr. Stotko’s newest study is designed to help provide better information to both families and health care providers.

But, while helpful, this study is not the answer.  Those who make the case that families shouldn’t have to take on the ‘burden’ of parenting a child with Down syndrome will probably point to the following:

  • The average household income of people who responded was more than double the national average, suggesting these families have more financial means to deal with issues related to disability than a typical family.
  • Those reporting a connection to the Catholic church are over-represented in this study (34% of study participants vs. 24% of Americans as a whole); the Catholic church supports babies being allowed to live.
  • 88% of families in this study are married; only 4% reported being divorced (other categories were widowed, single, and living with partner).

Hardest of all, 4% of respondents regretted having their child with Down syndrome.  We should all hurt for those families – they need help.

But possibly the most limiting thing is the reliance on reports of feelings.  We all know that feelings can change, both for the positive or the negative.  And we know that we frequently need to preach to ourselves to remember the truth, to make sure that our fickle feelings don’t guide us down a dangerous path.

The truth is this: God knows the ends from the beginnings (Isaiah 46:8-11); makes all things turn out for good for his elect (Romans 8:28); and supplies every need (Philippians 4:19).  We can trust him when nothing else makes sense.

So, let us use studies like this to help save babies and encourage families!  But let us do so carefully.

For that 4% who live with regret about the life of their child with Down syndrome, let us pray for them and reach out to them with the truth that is far more glorious than their limited experiences.  And we can boldly yet humbly guide others as we have been guided, including health professionals, toward the truth and the certainty of the sufficiency and glory of Jesus Christ.

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Common graces are everywhere

I have a Google+ account; I don’t know how to use it.

But I really like the fact that Google+ just made it possible for deaf people who use sign language to more easily access one of Google+’s popular features.

I love how God does things like that – takes a service probably created by people who never even think about God and makes it useful beyond its original intentions and limitations.

Maybe even for spreading the gospel!  Wouldn’t that be something!

Here’s a short video on the new function.  You will need to turn on the close captioning so you know what she is communicating. You can do so by clicking on the little (cc) button at the bottom of the video after you click play.

Unless you already know sign language, of course!

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God wins, again

Pat Robertson’s comments about abandoning a marriage when a spouse has Alzheimer’s are reprehensible.  Dr. Russell Moore and Ed Stetzer have both provided helpful responses.

Greg Lucas did an equally helpful thing – he pointed to how God has won, again, in this tweet from Friday:

Thankful to God for using Pat Robertson’s mouth to ignite a firestorm of passion for His glory in disability. (Romans 8:28)

There are dozens, maybe hundreds, maybe thousands, of stories being told today that refute Mr. Robertson’s remarks – stories of faithful men and women who persevered for years in caring for and loving a disabled spouse (ironically, Mr. Robertson references one such man in his remarks).  Those stories may never have been told otherwise.  How many people in that exact situation today are being encouraged that they aren’t crazy and they aren’t alone, that it is both right and worth it to care right to the end.

God uses even thoughtless, sinful remarks to bring glory to his name and to help people living with disability.  He is entirely, eternally amazing!  And he is entirely trustworthy to keep all his promises:”He will not leave you or forsake you” (Deuteronomy 31:6).

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Thank you, Russell Moore

And thank you to Justin Taylor for pointing to Russell Moore’s post on the atrocious words that came from Pat Robertson:

This week on his television show Christian broadcaster Pat Robertson said a man would be morally justified to divorce his wife with Alzheimer’s disease in order to marry another woman. The dementia-riddled wife is, Robertson said, “not there” anymore. This is more than an embarrassment. This is more than cruelty. This is a repudiation of the gospel of Jesus Christ.

Dr. Moore carefully unpacks why Pat Robertson’s words are so vile.

But he ends with a beautiful picture:

Jesus tells us he is present in the weak, the vulnerable, the useless. He is there in the least of these (Matt. 25:31-46). Somewhere out there right now, a man is wiping the drool from an 85 year-old woman who flinches because she think he’s a stranger. No television cameras are around. No politicians are seeking a meeting with them.

But the gospel is there. Jesus is there.

And I would add, somewhere out there is a dad taking care of his adult disabled son, wiping drool from his face, making sure he is clean and fed, never receiving a thank you in return or even acknowledgment that it matters. But the father never quits loving his child.

Is that not like how God the Father treats us?

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Good news!  Another printing of Just the Way I Am by Krista Horning either has or is about to begin.  Since it is being done in Asia, it will be several weeks before copies are available here.

Please pray that all goes well in this new production with a new publisher, and that all the copies would arrive here safely.  From what I understand, the book is exactly the same except for a new publisher page just inside the front cover.

I’ve been hearing stories about how this book has been used – public school (!!) Special Education departments, hospital and clinic waiting rooms, Sunday school classes, pre-marital counseling, foster homes, small groups, and, of course, one-to-one with parents, grandparents and loved ones.

May God be pleased to do it again!  I’ll be sure to make it obvious when copies are again available in the United States.

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Every time I hear that statement, I must pause and consider – do I really believe it?

I first heard it spoken out loud by my wife.  I knew she believed it then, and believes it now.

And now I see it written by a 14-year-old boy.  It is remarkable, both because it is hard and because it is presented without bitterness.

Trusting God like that is a gift.  Dianne didn’t earn it, nor did Victor.  God granted them the faith to believe that he is both sovereign and good in all circumstances, and he gave all of us a book telling us about him.

Brian Eaton, who is my friend, the Executive Director of Children Desiring God and lives with disability in his family, concluded his beautiful blog post about Victor this way:

God is the hero of Victor’s story. God has elected, called, justified, and glorified Victor in Christ Jesus (Romans 8:30). Victor was faithful to his Savior, and he sought every opportunity to share what was precious to him. May the Lord be pleased to use the testimony of the Watters family and Victor’s life and death to bring many into his kingdom.

Amen.  May God be pleased to use all of our stories to bring many more into the kingdom.

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The 14-year-old boy that Pastor Sam referenced as he closed his sermon on Saturday finally lost his battle with cancer.  He is now with Jesus.

For our devotions at work on Wednesday, Jon Bloom reflected on the example of a boy in teaching us how to die well.

He loved Jesus.  He made Jesus look beautiful and glorious.  His labor is over.

Our time is short.  How can we make Jesus look beautiful and glorious to a world that needs him and would find joy in him?

God has work for us to do – and he will help us complete it.  We do not labor in vain.

When the perishable puts on the imperishable, and the mortal puts on immortality, then shall come to pass the saying that is written:

“Death is swallowed up in victory.”

“O death, where is your victory?

O death, where is your sting?”

The sting of death is sin, and the power of sin is the law. But thanks be to God, who gives us the victory through our Lord Jesus Christ.

Therefore, my beloved brothers, be steadfast, immovable, always abounding in the work of the Lord, knowing that in the Lord your labor is not in vain.

1 Corinthians 15:54-58

In the Lord – what a help!  God will do it.

As I’m writing this on Wednesday, Pastor Sam’s sermon wasn’t up on the BBC website yet.  I’ll link to it when it is available.

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The quote in the title is embedded in this paragraph in the New York Times Magazine article, The Two-Minus-One Pregnancy:

“I couldn’t have imagined reducing twins for nonmedical reasons,” she said, “but I had an amnio and would have had an abortion if I found out that one of the babies had an anomaly, even if it wasn’t life-threatening. I didn’t want to raise a handicapped child. Some people would call that selfish, but I wouldn’t. Parents who abort for an anomaly just don’t want that life for themselves, and it’s their prerogative to fashion their lives how they want. Is terminating two to one really any different morally?” Dr. Naomi Bloomfield

The first several times I read this quote, I was deeply discouraged.  The breezy way in which all children, not just a child with a disability, are presented as commodities under the complete control of parents rather than blessings from God himself is chilling.

But then I saw a glimmer of light.  She had equated the morality of two decisions to abort: one to abort a child with a disability, and the other to reduce a pregnancy to a single child.

She is right.  Those two decisions are not different morally.  Both result in dead children.

And even in our culture which so highly values independence and beauty and an easy life, there is still a great deal of discomfort with the idea of aborting a healthy twin just for the sake of convenience.

Could God use this discomfort to turn people away from the destruction of little babies with disabilities? Could God in his infinite wisdom connect disability to pregnancy reduction so that more people come to the right conclusion more quickly – all children are valuable?

Is that idea any more far-fetched than a politician being used by God to make slavery illegal?

God can do it!  Let us pray that he would!

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Before modern methods of ventilation and gas detection became common, coal miners would take a canary into the mine to warn them about the presence of dangerous gases like methane and carbon monoxide.  As long as the bird could sing, the air was safe for the miners.  If it died – everyone got out as quickly as they could.

People with disabilities, especially children, have played and are playing a similar role for the culture.  When people with disabilities are openly abused and killed, it shows a deep danger for all of society.

Just three examples:

  1. The eugenics movement in the United States started against the ‘feeble-minded’ but quickly grew to include the poor and those who were the wrong skin color.
  2. Hitler didn’t begin by murdering Jews; he authorized the ‘mercy killing’ of a child with multiple disabilities as his opening effort.
  3. Pregnancy ‘reduction’ has existed for some time for women who were pregnant with more than three babies.  Until just a few years ago, however, doctors would generally not reduce pregnancies down to a single child – except when one of the children was identified as having a disability.

The recent New York Times Magazine article, The Two-Minus-One Pregnancy, is shocking – women who have gone through extraordinary financial expense and physical difficulty to conceive a child are intentionally destroying a healthy twin so that they only have to deal with a single baby.

But it is no surprise.  Our babies with disabilities have been warning us for some time that this was coming.  And like the canary, by not getting away from these poisonous, murderous cultural fumes, more children are dying.

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Did you see the stories about Oscar Pistorius, the man without legs below both knees who is running in the World Athletic Championship?

It is a great story of a remarkable athlete.  But some folks don’t like him competing because they feel his prosthetic legs or blades give him an advantage.

Isn’t that great – they’re concerned the guy without legs has an advantage in a running race!  Maybe technology will make that the case someday, but right now it seems like this guy is just a world-class athlete who needs prosthesis.

More importantly, those of us living with disability in our families really do have an advantage over those who are tempted to believe themselves strong and independent!

But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly of my weaknesses, so that the power of Christ may rest upon me. For the sake of Christ, then, I am content with weaknesses, insults, hardships, persecutions, and calamities. For when I am weak, then I am strong (2 Corinthians 12:9-10).

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