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Update on Baby RB

The news is not hopeful for that little boy who is severely disabled in the UK that I introduced you to yesterday.  Another doctor has determined that an operation would not be helpful in addressing all that is associated with his congenital myasthenic syndrome. There are now dozens of articles on google news if you would like to follow it.

There is so much at stake here, and so little is being directed at anything other than the ‘quality of life’ of that little boy.  Even the father has made that part of his argument, that the little boy will have some quality of life which gives that boy’s life purpose. I don’t think that will be enough; it isn’t a sufficient argument to make.

Some of the comments following the news articles about the mother and the father are horrifying.  I’m grateful for that boy’s father in how he is battling to save his son, but there is room for sympathy for the mother as well.

Even the most normal of babies will go through stretches – colic, fevers, sleepless nights – that deeply discourage parents.  The little boy in this case has been in the hospital since he was born 13 months ago.  For all of his life he has been hooked up to machines to help him breathe, to keep him alive.  Hospitals are horrible places for parents in these situations to keep perspective, to maintain healthy marriages, and to make good decisions under the intensity of the weight of all that is involved with doctors and insurance and just trying to consider the best interests of the child.

If those parents have been going it alone, it is no surprise they have separated and that they see the world differently for their son.  That doesn’t excuse or explain away anything, but it hopefully puts it into perspective.  That family needs a huge support system, the kind the church was created to provide:

Love one another with brotherly affection. Outdo one another in showing honor. Do not be slothful in zeal, be fervent in spirit, serve the Lord. Rejoice in hope, be patient in tribulation, be constant in prayer. Contribute to the needs of the saints and seek to show hospitality. Romans 12:10-13

But exhort one another every day, as long as it is called “today,” that none of you may be hardened by the deceitfulness of sin. Hebrews 3:13

For I long to see you, that I may impart to you some spiritual gift to strengthen you— that is, that we may be mutually encouraged by each other’s faith, both yours and mine. Romans 1:11-12

And we urge you, brothers, admonish the idle, encourage the fainthearted, help the weak, be patient with them all. See that no one repays anyone evil for evil, but always seek to do good to one another and to everyone. 1 Thessalonians 5:14-15

My family and I are the grateful recipients of such care from our church, as is reflected often in the ‘helpful things‘ series.  Let us pray for that boy and his parents and for the court system in the UK – and for the church to make much of God in how they treat that family.

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That is the headline in a November 1 article in the UK’s online version of the Sunday Times.  Here are excerpts from that article:

The one-year-old infant, known only as Baby RB, suffers from a rare genetic fault meaning his muscles are too weak for him to move his limbs effectively or breathe unaided.

His mother supports a hospital’s wish to have him taken off the ventilator, which would lead to his death, arguing his quality of life is too low. His father will fight the move in the High Court tomorrow.

If the hospital is successful, it will be the first time a British court has ruled life support can be withdrawn for a child not suffering brain damage, against the will of a parent.

Baby RB suffers from congenital myasthenic syndrome, for which there is no cure, and has been in hospital since birth. His brain has not been affected, and he can see and hear; he enjoys being read stories.

His lawyer will present video footage and photos of the child playing happily and interacting in hospital.

I’m not even sure where to begin with this:

  1. The incredible potential precedent of government approval for killing a child ‘not suffering from brain damage, against the will of a parent’ is extraordinary in itself.
  2. The fact that a mother would support the hospital’s wish to remove life-supporting technology from her baby is breath-taking.
  3. The happy news that a father is willing to stand up to protect his boy is a glimmer of hope.

The fact that people want to kill disabled babies is no longer a surprise.  And working against the will of a parent who is advocating for this child also isn’t a surprise, although the outcome here is certainly of greater consequence than normal.

So, let us pray for this father, that he may be allowed to raise his son with disabilities.  And let us pray that he would display such dimensions of gentle, loving, manly, persistent, God-centered leadership that his wife would be drawn back to him so they both can raise that boy together.

Let us also be glad that a new day is coming.  Someday, hospitals will no longer be necessary and those hospital personnel that abandoned their mission of care to advocate the destruction of an already-born child with disabilities will give account.

And let us pray that this mother will turn her heart toward her child, as the father has, because there are hard consequences for turning away from children.

“For behold, the day is coming, burning like an oven, when all the arrogant and all evildoers will be stubble. The day that is coming shall set them ablaze, says the Lord of hosts, so that it will leave them neither root nor branch. But for you who fear my name, the sun of righteousness shall rise with healing in its wings. You shall go out leaping like calves from the stall. And you shall tread down the wicked, for they will be ashes under the soles of your feet, on the day when I act, says the Lord of hosts.

“Remember the law of my servant Moses, the statutes and rules that I commanded him at Horeb for all Israel.

“Behold, I will send you Elijah the prophet before the great and awesome day of the Lord comes. And he will turn the hearts of fathers to their children and the hearts of children to their fathers, lest I come and strike the land with a decree of utter destruction.” Malachi 4:1-6

 

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It is time to bring this series of posts on eugenics and abortion to a close for now.  I’ll come back to it at some point.  The evil of abortion, especially in the genocide of children with Down syndrome and spina bifida today, will need to be confronted until it is gone.  And the eugenics movement is making a comeback in some dark places.

But, for now, I’ll let Pastor John have the final word:

If we found in God what God really is, if we were not willfully blind and rebellious against him as our all-supplying portion in this life and the next, we would not abort our children. The root cause of abortion is the failure to be satisfied in God as our supreme love. And, for all the great legal work that needs to be done to protect human life, the greatest work that needs to be done is to spread a passion – a satisfaction – for the supremacy of God in all things. That’s our calling.

Amen.

This comes from his sermon, Where Does Child Killing Come From, that he delivered on January 25, 1998.  You can read or listen to it here.

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Stopping the practice of aborting babies with disabilities is not just a ‘Christian’ concern.  There are those who distance themselves from ‘the anti-choice movement,’ yet have their own arguments against the selective destruction of babies with disabilities.

Marsha Saxton, Ph.D., in Disabled Women’s View of Selective Abortion: An Issue for All Women:

Selective abortion is not just about the rights or considerations of disabled people; the rights of women and of all human beings are implicated here. . .

If a condition (like Down’s Syndrome) is unacceptable, how long will it be before experts use selective abortion to manipulate other (presumed genetic) socially charged characteristics: sexual orientation, race, attractiveness, height, intelligence? Pre-implantation diagnosis, now used with in vitro fertilization, offers the prospect of “admission standards” for all fetuses.

Some of the pro-screening arguments masquerade today as “feminist” when they are not. Selective abortion is promoted in many doctor’s offices as a “reproductive option” and “personal choice.” But as anthropologist Rayna Rapp noted, “private choices always have public consequences.” When a woman’s individual decision is the result of social pressure, it can have repercussions for all others in the society.

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Continuing yesterday’s discussion of Dr. Paul Simmons’ use of scripture to justify his view that abortion is an acceptable moral choice, today we’ll look at how he deals with an important passage regarding God’s sovereignty over disability, Exodus 4:10-11:

But Moses said to the Lord, “Oh, my Lord, I am not eloquent, either in the past or since you have spoken to your servant, but I am slow of speech and of tongue.”Then the Lord said to him (Moses), “Who has made man’s mouth? Who makes him mute, or deaf, or seeing, or blind? Is it not I, the Lord?

Here are Dr. Simmons own words on that passage, from his article, Personhood, the Bible and the Abortion Debate:

Using God’s statement to Moses to explain genetic deformity betrays careless exegesis leading to faulty conclusions. The context was Moses’ reluctance to become God’s spokesman because he feared he would not be persuasive. “Dumb,” “deaf,” and “blind” are metaphors for the ability to speak and understand God’s truth. This passage has nothing whatever to do with genetic handicaps.

Dr. Simmons is correct that Moses was reluctant.  But he is not correct that God is merely using a rhetorical device to make a point. (more…)

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Pay careful attention to yourselves and to all the flock, in which the Holy Spirit has made you overseers, to care for the church of God, which he obtained with his own blood. I know that after my departure fierce wolves will come in among you, not sparing the flock; and from among your own selves will arise men speaking twisted things, to draw away the disciples after them. Acts 20:28-30

I know this has not been a pleasant series of blogs.  But our children with disabilities are being slaughtered in frightening numbers through abortion and it must be addressed.  Women and men who otherwise would never consider abortion as an option in their pregnancies suddenly are unsure when disability has entered the question.

None of us who have children with disabilities will ever say it is easy – in fact, the burdens sometimes seem to multiply over time.  But our God, who is sovereign over all his creation in every moment of every day has promised, through the obedience, the death, and the resurrection of his own son Jesus Christ, to provide for all our needs.  All of them.  For his glory and for our good.

So theologians and pastors who preach a contrary message, who encourage the devastating sin of abortion in our land, must be called out.  What you are reading is largely a conversation I am having with myself, so that I can be prepared to address horrible arguments in support of abortion.  We have wolves among us. (more…)

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Look out for the dogs, look out for the evildoers, look out for those who mutilate the flesh. Philippians 3:2

As I’ve been reading and reviewing the connection between some church leaders and the abortion movement, I have begun to see why Paul called out specific leaders for us to avoid:

But avoid irreverent babble, for it will lead people into more and more ungodliness, and their talk will spread like gangrene. Among them are Hymenaeus and Philetus. . . 2 Timothy 2:16-17

Vincent Lachina is one to be avoided.  On page three in the Spring 2008 edition of Voices: The Choice Debate Newsletter, he describes himself this way:

I am an Evangelical Christian and an ordained Southern Baptist minister working as a Chaplain for the Planned Parenthood affiliates of Washington State.

For me, faith and choice are completely compatible, and can – and often do – live in harmony.  In truth, clergy involvement in family planning has a long and significant history.

That history apparently includes a proud association with the racist and eugenicist Margaret Sanger. (more…)

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That title probably isn’t fair.   I don’t know if the clergy associated with Planned Parenthood are intentionally misrepresenting the Bible, or if they don’t know it all.

From Planned Parenthood Federation of America’s Clergy Advisory Board’s Pastoral Letter on Abortion:

Our religious traditions have somewhat different opinions about abortion, but we share some basic understandings.

  • No one knows the circumstances of your life as well as you know them; no one knows what is in your heart better than you. Allow yourself to be at peace with your decision.
  • I will just focus on two things that are significantly wrong with that bullet in the letter: (more…)

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    For the past two days I’ve reviewed Amy Laura Hall’s essay on the support some pastors and theologians gave to the eugenics movement in the United States.  As others have also noted, Hall makes the connection between yesterday’s eugenics movement and today’s extraordinarily high rates of abortion of children with disabilities:

    (M)any eugenic ideas have jumped the gap from yesterday to today, bridging the chasm between overtly coercive eugenics and purportedly voluntary parental and social responsibility in the land of the free. (Swinton and Brock, p. 78)

    Purportedly is the right word.   (more…)

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    Those of us with one child with a disability know what it’s like to live in a fishbowl.  Now multiply it!

    Julie and Mark Martindale lead an incredible family.  I’m glad to know them, even though I don’t get to see them nearly enough.  I think you’ll be blessed by this reflection that Julie posted a few days ago on her blog, Not Just an Ordinary Life.

    Here’s an excerpt:

    This life does not provide alot of privacy…we live our live’s in a fish bowl. Whenever we go some where, we make a statement whether we feel like it or not. Through size, diversity and disability, there is no hiding in the crowd.

    You can read the entire post here.

    By the way, Julie’s post yesterday on now being the parent of two adults, one with disabilities and one not, is also pretty powerful.

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