Feeds:
Posts
Comments

Archive for the ‘commentary’ Category

Lord willing, as I write this Dianne is about to go to a committee meeting at my dad’s church on their disability ministry.  She and our children are visiting my parents the next couple of days.

Dad’s church is in that awful early place of most discussions like this: where do we start?  There is need, there is desire, and there is so much that could be done. There are more ideas than resources. The desire to do it ‘right’ from the beginning is very strong, and can actually slow things down or derail an effort entirely.

As Dianne and I talked about it this morning, we both landed on how important it is to look at who is right in front of you, then pick one and do something.  Doing something for one family starts a church down the road of serving the next family.  Pretty soon, the church is serving several families.

And that isn’t easy.  In fact, I made the comment this morning, “we try things, and we frequently do it badly!”  Children don’t have good experiences.  Parents become discouraged.  Volunteers are disappointed.  Brenda, our disability ministry coordinator, is overwhelmed by the complexity of requests and the depth of the pain in families.

It often feels like a mess.

Yet – praise be to God! – we learn things and God helps us.  Over time, volunteers understand how to serve in ways that make sense.  Bonds frequently develop between a volunteer and a child.  Parents gain confidence that their child with disabilities is not just being served, but is loved and respected as the unique individual God made him or her.

That’s pretty sweet!

And then another family comes, or a volunteer needs to step down, or a new situation shows up in a family, and the process of praying, learning, failing, and, Lord willing, finding that sweet engagement starts all over again.

We constantly need God’s help!  I am grateful he is a big God who loves to be needed and leaned on as the sovereign, omnipotent, omnipresent, loving, good provider he is.

I didn’t always understand that.  There are some old emails I sent to Pastor David Michael that make me cringe inside over the slights I felt we were experiencing at church.  I am very grateful he, and others, looked to Jesus rather than in my negative responses as they sought to serve the Knight family.  There really wasn’t much positive relational payoff in serving us those early days!  Over the years God has frequently used Bethlehem to change my heart, encourage me in dark days, and help me to see the preciousness of his word.

It wasn’t a perfect disability ministry program that drew us and kept us at Bethlehem.  It was the people, always the people.  People who trusted Jesus above everything.  People who knew that Jesus would supply every need of theirs and of ours.  People who were quick to forgive.

And that’s why I have hope that a church in Winona, Minnesota will get started in serving some of their own families experiencing disability.  Because my dad loves Jesus, he wants others to love Jesus, too, and he particularly has a heart for other moms and dads and grandparents with children with disabilities.

And that’s better than the perfectly designed program any day.

Read Full Post »

I’m glad to introduce you to another dad from Bethlehem today, Chris Nelson.  If you are fortunate to have a copy of Just the Way I Am, you can see Chris with his oldest boy on page 45.

I could say a lot about this man who I deeply respect, but I’ll just share this one fact about his family.  He and Katie adopted Andrew and then learned about his significant disabilities.  That was a hard blow. A few years later, with the full knowledge about what could happen, they adopted AGAIN, trusting God to provide all they would need.  Today they also have a third son God gave them through their own pregnancy.

In other words, God has called him and sustains him through hard things.  Thank you, Chris, for writing today.

The Pursuit of Happiness

The depth of human depravity is readily apparent when we are “me” centered rather than God-centered.  When the pursuit of personal happiness trumps the pursuit of holiness.  When we are so busy pursuing our sin-saturated mud puddles that we neglect to even consider what it might mean to embrace God’s offer of an eternal holiday at the sea.

On June 8 it was reported in a story on startribune.com that a Colorado woman was accused of killing her 6 month old baby.  Her motive?  “She believed the boy was autistic and thought his condition would ruin her life.”

She killed her own baby, knitted together in her womb by her Sovereign and Loving Creator, because she thought he might cramp her style.  She reportedly considered taking her own life instead, but didn’t want to unduly burden her husband with the child.  That’s chilling.  That’s real.  That’s the overflow of the human heart un-broken and un-repentant over sin, and un-surrendered to the restraining and sustaining and transforming mercy and grace of God as revealed in Christ Jesus.

As I reflected on this story, and my own struggle to mortify my sin as it is daily revealed to me through the gift of a mentally disabled son, Pastor John’s word from his sermon Sustained by Sovereign Grace-Forever, came to mind:

Not grace to bar what is not bliss,
Nor flight from all distress, but this:
The grace that orders our trouble and pain,
And then, in the darkness, is there to sustain.

True and abiding joy isn’t in being burden-less.  It is in being upheld and transformed through the burden by the grace of God.  It is, when facing often weighty temptations to wallow in despair and anger and self pity, to repent afresh of our sin and gaze up from the foot of the cross to marvel at the one who paid our debt, and to freshly turn our focus to the risen Lord and His purposes, rather than our pathetic pursuits of momentary and fleeting escape from hard things.

Read Full Post »

Saturday evening reminded me that I have something very precious at Bethlehem, and I want more people to have it as well.  One of the many blessings is that I am not remotely tempted to stay away from church when things don’t go well because of Paul’s disabilities.

I decided our family should attend the North Campus on Saturday evening as Dianne was out of town for a wedding.  The North Campus is accessible, parking is easier, we know lots of people, and Paul has even been known to make it through an entire service there.  I like it when Paul can be with the family during the regular worship service, and summer is a good time to see how things go.

Such was not the case on Saturday.  Paul was in full voice early.  I think we made it through three minutes in the sanctuary before I knew he would be vocalizing happily and loudly through the whole service.  I could see the body language of people around us as he talked.

So we shifted to the restless child room. Let me be clear, nobody was unkind, nobody shot a look my way.  I was the one who was uncomfortable staying.

Paul continued his happy noises in the restless child room.  At one point we even got a version of ‘let is snow.’  I don’t know if that was Paul editorializing about the air conditioning.

Since this is our life, I tuned Paul’s noises out (for the most part) and tuned in to Pastor Kenny.  After almost 15 years, sometimes we just have to tune out the vocalizing to get anything done.

I loved Pastor Kenny’s sermon on prayer – it was very helpful!

But when he started wrapping up, I looked down and saw a very little girl staring at Paul because of his noises and realized her mom had been distracted the whole service.  This little one was quite interested in Paul, so was no longer restless.  Well, I thought, embarrassed at my lack of attention to this young mom’s inability to enjoy worship, its time to go and hauled my crew out.

So, I felt embarrassed a couple of times.  But I love my church and know I’m welcome with my family.  I like the fact that Paul is known by many, and loved by lots of those who know him.  I’m glad to know the North Campus has a restless child room, and nobody thinks twice about my using it with my kids.  Time with this people of God has resulted in many benefits, including chalking up another interrupted service with Paul as just that – just one service of many more I hope the Lord grants to me and my family.

But such is not the case for every family with a child like mine.  Some churches are not as welcoming or persevering.  Families get trained that if their child cannot fit a particular mold, that child isn’t welcome.  One bad experience at a church, and they are gone, long before all the benefits of long-term attendance begin to accrue.

So how do we do two things:  1) let families know that there are biblical churches like Bethlehem that are imperfect, make huge mistakes, and deeply want to love and welcome that child just as Christ loves the church; and 2) encourage those families to hang in there with those same churches through all the ups and downs of disability, until the benefits and blessings start to become more apparent?

Read Full Post »

Disability manifests itself in a thousand different ways.  Sometimes a child matures as he should physically, but cognitively never develops.  Sometimes a child’s mind thinks clearly, but her body has significant physical differences.  And some children experience both.

My boy is one who will never develop either physically or cognitively.  Things can be hard for him at times.  He can’t tell us where things hurt when he’s sick, or why he’s frustrated.  We frequently don’t know why he’s laughing, either.  For some reason, spontaneous laughter doesn’t rise up temptations to worry like other behaviors do!

And God, in his kindness, lets me be comforted by his word at unexpected moments.

On Friday, Dr. Mark Struck used this passage from Matthew 11:25-30 in his devotions with Desiring God’s staff.  Jesus is talking to the Father, and we get the help and encouragement:

At that time Jesus declared, “I thank you, Father, Lord of heaven and earth, that you have hidden these things from the wise and understanding and revealed them to little children; yes, Father, for such was your gracious will. All things have been handed over to me by my Father, and no one knows the Son except the Father, and no one knows the Father except the Son and anyone to whom the Son chooses to reveal him.  Come to me, all who labor and are heavy laden, and I will give you rest.  Take my yoke upon you, and learn from me, for I am gentle and lowly in heart, and you will find rest for your souls.  For my yoke is easy, and my burden is light.”

It was a sweet word for me.  Jesus knows it all.  Jesus has ALWAYS known it all.  ALL things have been handed over to Jesus by the Father.  Jesus promises rest for ALL he has chosen.

My boy is known completely, and he has been from before creation.  Jesus knew what he was doing when my Paul’s life was prepared, for God’s glory and for the good of God’s church.

Read Full Post »

A good word from Pastor John for dads – from 1982!  You can read the entire article here.

Please also note: while the suggestions remain as relevant today as they did 28 years ago, some of the details have changed.  The Christian Action Council is now known as Care Net.  And I’m hoping that baby in number five is 28 years old!

Dad’s let’s do something! Here are five modest suggestions:

  1. Trust so fully in the all-sufficiency of Christ that you never have or encourage the attitudes of fear or self-indulgence that cause abortions. Faith casts out fear and fosters love for the helpless.
  2. Don’t even entertain the possibility of an abortion for your wife. Many women are pressured into abortions by husbands who did not want another child. Don’t ever do that!
  3. Teach your children that the pride which kills helpless life is an abomination in the eyes of God. Show them that a human being is the one creature on earth with the potential of consciously glorifying God through faith, and therefore unwarranted killing is an assault on the glory of God.
  4. Keep informed about legislation that will provide protection under law for the unborn children who cannot protect themselves. Write for the Christian Action Council Newsletter at 422 C Street N.E., Washington, D.C. 20002. Or: Twin Cities Christian Action Council, 14810 Lloyds Drive, Minnetonka, 55343.
  5. Support ministries to young women who make the decision to keep an unexpected pregnancy. For example, GMAE has both a Crisis Pregnancy Line & New Life Homes/Family Services. Or call Faith Jaeger, Bethlehem member. She works with young, unwed mothers. Right now she has a need for a home for 3 weeks for a young mother and new baby.

Read Full Post »

As we approach Father’s Day weekend, some of the verses that mention fathers and disability close together seem to become more obvious.  Consider this series of verses from Deuteronomy 27:

“‘Cursed be anyone who dishonors his father or his mother.’ And all the people shall say, ‘Amen.’

“‘Cursed be anyone who moves his neighbor’s landmark.’ And all the people shall say, ‘Amen.’

“‘Cursed be anyone who misleads a blind man on the road.’ And all the people shall say, ‘Amen.’

“‘Cursed be anyone who perverts the justice due to the sojourner, the fatherless, and the widow.’ And all the people shall say, ‘Amen.’

Deuteronomy 27:16-19

A curse is a serious thing.  It leads to eternal destruction!  It is kind that God warns those who might be tempted to abuse someone with a disability – a curse will fall upon you from God himself!  And it is a grace for those who live with disability – God sees everything and justice will come.

Read Full Post »

Gregg Harris is well-known in Christian home-schooling circles.  Some credit him with starting the movement.  Today he also known as the father of the Christian leaders and authors, Josh, Alex, and Brett Harris.

But many don’t know that he started out life facing potentially deadly health complications:

Their little boy had three very serious internal birth defects.  For there to be any hope of his survival, he had to undergo three major surgeries within forty-eight hours of his birth.  In 1952 the procedures were dangerous, bordering on experimental.  If he survived, the doctors said, he probably wouldn’t make it past six years old.  And if he did, he would be confined to a wheelchair and need constant care. (Josh Harris, Dug Down Deep, p. 121).

And the impact on his mother?

Caring for him consumed every ounce of her energy, leaving her physically and emotionally exhausted.  Worse of all she was alone in the endeavor.  Grandpa couldn’t handle his son’s disability. . .

The daily stress was almost too much for Grandma to handle.  She contemplated suicide.  “I know that’s wrong,” she told God. And when she thought of little Gregg, she knew she had to keep living, if only for him.  “My life is like a jigsaw puzzle that’s all confused, and I can’t put it together,” she prayed.  “God, only you can fix this.” (Harris, pp. 121-2)

Doctors making pronouncements about the kind of life the child would have. A father who can’t stand to be around his son because of his disability.  A mom living on the edge for years.  A boy who suffers cruelty and embarrassment because of his disability.

Does this sound at all familiar?

This is the kind of child that abortionists would target and proponents of infanticide would say is better to kill – think of all the suffering that could be avoided!  Think of the marriage!  Think of the mom’s mental health!  Deadly, and effective, lies.

To be sure, the suffering is real.  But that is only one part of any story that God is writing.

And today Gregg Harris continues to have influence in the church and has raised boys to adulthood who write helpful books, like Dug Down Deep and Do Hard Things.

Not every story turns out like that, of course.  Our son Paul won’t be writing any books or raising any famous sons.  But God knows exactly why he made Gregg Harris and Paul Knight the way he did, and that is good enough for them to be allowed to live.

Read Full Post »

My google reader pointed me to the national gathering of denomination with ‘Reformed’ in its name that is meeting this week.  Part of the national gathering included a report of  their disability ministry council and its strategies and desired outcomes by 2013.

It was boring.

I don’t mean that as an indictment on their work at all.  I’ve done it myself; I’ve fallen into that same trap of feeling like the group I’m involved in needs to produce outcomes of significance, with time lines and measurements of progress.

And most of the time, when I visit denominational websites or read their papers on disability ministry, I end up with very little I can actually sink my teeth into with regards to the real issues in our church.

Let me repeat – I’m glad people care about this issue and are willing to put the time in.  Without meeting any of those volunteers who served on that disability ministry council, I know they deeply desire something better for the churches in their denomination with regards to people with disabilities.

But the end result is pronouncements about numbers and activities that have almost nothing to do with the life of a particular church, and even less so to do with individual people in those churches.

There was one interesting thing embedded in the council’s report: a story about a church plant specifically for people with disabilities in an area that included a number of group homes serving adults with disabilities.

Not to read too much into it, but I think they did two things right in creating that church:  1) They had a real need in front of them; they listened to the passion of a mother with an adult son with disabilities who had never had a good church experience, and 2) they went ahead and did something about it, without waiting for the denomination’s disability ministry council to lead the way.

I’m probably biased because that is how things have gone at Bethlehem with our little ministry.  A family shows up, and we try to figure out how to serve them.  Sometimes it goes really well from the beginning.  Sometimes the road is very difficult, and nothing seems to work.  God is continually humbling and holding us up at the same time.

In the end, I don’t want to be too hard on that denomination because at least they have a disability ministry council, which shows their concern for the issue.  The denomination that Bethlehem belongs to has exactly zero documents on this subject at the moment, and certainly no councils, task forces or committees.  At this moment, I must admit almost no desire to encourage them to do otherwise or get involved even if they called for the formation of their own council.  Which again speaks to my own biases about how I think things get accomplished!

If Converge/BGC were to call for such a council, would you serve on it?

Read Full Post »

A 2 1/2 minute video from Andrea Bocelli, internationally acclaimed tenor and blind since the age of 12, on a choice his mother faced.

I am glad to use this famous singer’s testimony about his mother to encourage more women “in those moments when life is complicated” to let their babies live.

Of course, things have turned out pretty well for Mr. Bocelli.  Most of us won’t experience that, or even close to it.  Doctors know that.  Mothers-to-be know that.

So we should cling to something better – the righteousness of Jesus Christ:

May you be strengthened with all power, according to his glorious might, for all endurance and patience with joy, giving thanks to the Father, who has qualified you to share in the inheritance of the saints in light.  He has delivered us from the domain of darkness and transferred us to the kingdom of his beloved Son, in whom we have redemption, the forgiveness of sins.

He is the image of the invisible God, the firstborn of all creation. For by him all things were created, in heaven and on earth, visible and invisible, whether thrones or dominions or rulers or authorities—all things were created through him and for him.  And he is before all things, and in him all things hold together. And he is the head of the body, the church. He is the beginning, the firstborn from the dead, that in everything he might be preeminent.

Colossians 1:11-18

Yes, disability is included in the ‘all things!’

Read Full Post »

Tim Challies recently stated on a podcast that when he sees a child with Down syndrome, he assumes the family is Christian.  Why?  Because so many children with Down syndrome are not allowed to be born.

Al Mohler wrote yesterday (scroll down almost to the bottom) on two recent articles that Dr. Peter Singer wrote, one for the New York Times and one for the Guardian.  I agree with Dr. Mohler’s opinion about Dr. Singer:

Professor of Bioethics at Princeton University, Peter Singer is one of the most reprehensible intellectual forces alive today.

And yesterday I read that scientists have found a genetic link for autism.  Even if it does explain only 3% of autism diagnoses, it is a beginning to unraveling the mystery that is autism.  I’m all for unraveling mysteries and helping more kids.  But one significant result of better knowledge about Down syndrome is that more kids with Down syndrome are being killed before they are born.

What you believe about God matters a lot here.

Much more comes to mind with all the above news, especially about Peter Singer’s new idea (mostly tongue-in-cheek and simply meant to provoke, I’m guessing) that this generation of human beings be the last generation.

But this one thought kept coming to mind as these articles swirled around in my head:

Is the church ready for what’s coming concerning our children with disabilities?  Is the church preparing people right now for the suffering they will experience when a child is diagnosed with a disability?

In one sense, yes.  University professors like Dr. Singer have been mocking the notion of a transcendent, sovereign God for centuries.  Our most recent murderous decades with abortion were preceded by the murderous eugenics movement by almost a century.  The church is still here, and God continues to call some to stand against such evils and some to live with disability in their families.

But it seems like it is coming faster and sooner than before.  Prenatal diagnoses of increasing numbers and types of disabilities are becoming more common.  Rates of abortion for children with disabilities are at stunning levels.  Men and women can take tests to determine the likelihood of their conceiving a child with certain disabilities, with the assumption that this is not to prepare them to raise a child, but to help them avoid having such children.

We need the church to help their people now, before the diagnosis comes.  What we believe about God and other people and how we spend our lives is at stake:

The ultimate purpose of the universe is to display the greatness of the glory of the grace of God. The highest, clearest, surest display of that glory is in the suffering of the best Person in the universe for millions of undeserving sinners. Therefore, the ultimate reason that suffering exists in the universe is so that Christ might display the greatness of the glory of the grace of God by suffering in himself to overcome our suffering and bring about the praise of the glory of the grace of God.

O Christian, remember what Carl Ellis and David Powlison and Mark Talbot and Steve Saint and Joni Eareckson Tada said: they all, in their own way, said that whether we are able or disabled, enduring loss or delighting in friends, suffering pain or savoring pleasure, all of us who believe in Christ are immeasurably rich in him and have so much to live for. Don’t waste your life. Savor the riches that you have in Christ and spend yourself no matter the cost to spread your riches to this desperate world.

Pastor John Piper, from The Suffering of Christ and the Sovereignty of God at the 2005 Desiring God National Conference.

Read Full Post »

« Newer Posts - Older Posts »