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Is it wrong?

Since I was asked to write a weekly blog posting for Desiring God, some interesting emails have come into the office.  I haven’t been able to respond to all of them, but I received one that was so serious I decided I needed to attempt a response, even though I think it was ‘above my pay scale.’

I am trusting that God gave me something, but the question still makes my heart race and palms moist.

In essence, the emailer asked if he was wrong to ask his family to withhold food from him if he became incapacitated sometime in the future.

What would you say to that question?

Here is my attempt at an answer:

As long as you let me speak solely for myself and not for Desiring God, I’ll take a try at a response.

There is a difference between end-of-life issues and issues related to lifelong disability, but I would suggest we be very careful in both cases.

And I strongly suggest that issues like this really need to be hashed out personally in the presence of other mature Christians, with Bibles open and a humble desire to pray for and receive God’s wisdom.

But I do want to raise a caution.

As you can probably tell from my recent posts, I am very concerned about our culture’s view of people with disabilities as represented in the rate of abortion of children identified with disabilities in the womb.  But we see echoes of that thinking elsewhere – even in your own statement about not wanting to live if you can’t feed yourself.  I’m assuming you mean that you are so incapacitated that you cannot perform any duties that right now are important to your functioning – feeding, toileting, communicating, living independently, etc.

Does (being incapacitated) make you less human?  Does that make boys like my son less human to you?

My guess is that you would answer ‘no’ immediately to the second question but might pause before answering the first.  I pause as well – I’m as American, middle-class, and independent as you probably are, which means even the thought of being incapacitated is revolting.

But our lives are not our own.  The classic Biblical text used to address abortion is Psalm 139:13-15, but if we continue to verse 16 we see this:

Your eyes saw my unformed substance; in your book were written, every one of them, the days that were formed for me, when as yet there was none of them. (Psalm 139:16 ESV)
God himself knows our days, even the days ahead that would frighten us because of things like loss of capacity.  Do we believe he is sovereign over those days as well?  Do we believe he will help us in those days?

And in 1 Corinthians we see this:

Or do you not know that your body is a temple of the Holy Spirit within you, whom you have from God? You are not your own, for you were bought with a price. So glorify God in your body. (1 Corinthians 6:19-20 ESV)

So, asking our families to withhold what is natural to our existence – such as food and water – rather than being a helpful thing for yourself or your family could be an expression of sinful self-determination.  It could also rob them of a life-changing opportunity to love and care for you, trusting God to supply all their needs and make much of Jesus in the midst of really hard circumstances.

Dementia is a horrible thing, as is cancer, blindness, and autism.  The creation is groaning.  Yet, God is sovereign over all things – and we can make Jesus look even more beautiful as we wait:

For I consider that the sufferings of this present time are not worth comparing with the glory that is to be revealed to us. For the creation waits with eager longing for the revealing of the sons of God. For the creation was subjected to futility, not willingly, but because of him who subjected it, in hope that the creation itself will be set free from its bondage to corruption and obtain the freedom of the glory of the children of God. For we know that the whole creation has been groaning together in the pains of childbirth until now. And not only the creation, but we ourselves, who have the firstfruits of the Spirit, groan inwardly as we wait eagerly for adoption as sons, the redemption of our bodies. For in this hope we were saved. Now hope that is seen is not hope. For who hopes for what he sees? But if we hope for what we do not see, we wait for it with patience. (Romans 8:18-25 ESV)

We haven’t met personally, and I know what I’ve written could come off as arrogant and judgmental.  I pray it doesn’t land on you like that but rather as one brother to another who wants to understand this life in light of the Word of God.  These are tremendously important questions.

Someday, we will both see clearly!  May Jesus come back soon!

John

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As God has done many times for me, I was confronted by two contrasting views of God’s sovereignty over just a few hours.  One view was in a memoir by a parent about her child with disabilities; the other was an email from a dear family.

The memoir includes all the things we parents of children with disabilities understand: shock, anger, despair, contemplation, surprise, delight.  But there is a lingering assertion throughout: God, explain yourself in ways that make sense to how I want you to be.

The email from our friends came with news about a new and difficult diagnosis for their child. The options are limited; the side effects of some medications are incredibly hard to bear.  And there was a strong affirmation throughout: God, you are who you say you are, and we trust you.

The contrast was good for me.  One thought hard about experiences.  The other thought hard about scripture, and interpreted the experience in light of God’s word.

There are many things God chooses not to reveal.  But he did reveal the most important thing, the most beautiful thing, the most necessary thing – Jesus.  What God reveals in his word and when he grants us faith in Jesus, we know his goodness and love and mercy and wrath and kindness are so certain we can join with Paul in proclaiming:

Oh, the depth of the riches and wisdom and knowledge of God! How unsearchable are his judgments and how inscrutable his ways!

“For who has known the mind of the Lord,
or who has been his counselor?”
“Or who has given a gift to him
that he might be repaid?”

For from him and through him and to him are all things. To him be glory forever. Amen.

(Romans 11:33-36 ESV)

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Paul woke up in a mess on Wednesday, the kind that demands attention before he can be ready for school.

It was a moment ripe for a ‘why me, Lord’ thought.

God, instead, reminded me of Greg Lucas’ son, who frequently also woke up in a mess.  In his book, Wrestling with an Angel, Greg articulates the road I was going down:

Many mornings I leave Jake’s room dejected, hurt and emotionally drained. (Lucas, p. 22)

But he doesn’t stay there!

The only way to make any sense of this kind of relationship is to experience it through the unconditional love of the Father. (Lucas, p. 23)

Greg then unpacks what that means, in a God-centered, humble, grateful way.

And because Greg told his story about God in the midst of rotten circumstances, I was encouraged to fight my discouragement and run to God in my rotten circumstance.

If you are living in discouragement over disability right now, I highly recommend you buy and read (or read again) Greg’s book.  God is honored in this book, and I know many people personally who have understood their own circumstances differently after reading it.

And if you have a story of God’s goodness – tell it!  We honor God when we give him glory in hard circumstances.  And your story may come back, months or even years later, to encourage a hurting brother or sister.

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I spent a wonderful two hours with the first-year students in the Bethlehem Seminary on Wednesday.  Yes, I was talking about disability and some of the hards things associated with it.

And also about God’s word.  I love how the Bible is full of God’s pointing us to his glory through disability!  It was easy to share that part of the story with them.  I hoped to encourage them that people like us, in the pews, can love the word and what it teaches us about our God.

I almost began to cry, somewhere in the middle of my time with them, at the goodness of God in providing these men, most of them young men in their 20’s, who are earnestly seeking God – with head and heart – for the purpose of proclaiming his glory.

These men are preparing to stand in the gap for me and for you – against a culture that prizes comfort and hates those with disabilities, against theologians and ‘teachers’ who seek to strip the word of its meaning and undermine God’s sovereignty, against even the evil in my own heart.

They are preparing themselves to tell the truth about God.  It is God’s sovereignty over all things, including disease and disability, that provides the ultimate hope and access to joy.

It was a privilege to be in their presence and imagine what God might be preparing them to do, for his glory and for our good.  Please pray for Bethlehem College and Seminary students.  The future of the church will be in their hands, and I look forward to watching what God has in store to make his name great through them.

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Francis Chan provided a great perspective on unanswered prayer in a video on the DG blog on Friday.  If you haven’t watched it, it is worth the 2.5 minutes!

But God reminded me on a couple of occasions this past week how much he is for me, even though I didn’t come to him at all.

The school district decided to change the bus schedules, which seriously and negatively impacted our morning responsibilities.  I was mentally working through our options for several days, and not coming up with anything particularly helpful.

On the first day of school God just went ahead and provided a great gift that solved the whole thing.  And THAT was when I realized I had never come to him even once with this problem.

Of course I was grateful to God and thanked him for helping us.  But I also needed to ask forgiveness for not bringing this thing to him in the first place.  The joy and gratitude I felt was tempered by my knowing my battle against my willful, sinful independence continues.  But there was still a lot of joy and gratitude!

God knows what we need before we ask (Matthew 6:8), but that isn’t an excuse not to ask him.  Jesus himself taught us how to pray and lived a life full of prayer.  And Paul taught us to ‘pray without ceasing’ (1 Thessalonians 5:16-18).

I want to live like that; I don’t want anything getting in the way of my joy in God!  I pray you do as well.

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Every time I hear that statement, I must pause and consider – do I really believe it?

I first heard it spoken out loud by my wife.  I knew she believed it then, and believes it now.

And now I see it written by a 14-year-old boy.  It is remarkable, both because it is hard and because it is presented without bitterness.

Trusting God like that is a gift.  Dianne didn’t earn it, nor did Victor.  God granted them the faith to believe that he is both sovereign and good in all circumstances, and he gave all of us a book telling us about him.

Brian Eaton, who is my friend, the Executive Director of Children Desiring God and lives with disability in his family, concluded his beautiful blog post about Victor this way:

God is the hero of Victor’s story. God has elected, called, justified, and glorified Victor in Christ Jesus (Romans 8:30). Victor was faithful to his Savior, and he sought every opportunity to share what was precious to him. May the Lord be pleased to use the testimony of the Watters family and Victor’s life and death to bring many into his kingdom.

Amen.  May God be pleased to use all of our stories to bring many more into the kingdom.

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The quote in the title is embedded in this paragraph in the New York Times Magazine article, The Two-Minus-One Pregnancy:

“I couldn’t have imagined reducing twins for nonmedical reasons,” she said, “but I had an amnio and would have had an abortion if I found out that one of the babies had an anomaly, even if it wasn’t life-threatening. I didn’t want to raise a handicapped child. Some people would call that selfish, but I wouldn’t. Parents who abort for an anomaly just don’t want that life for themselves, and it’s their prerogative to fashion their lives how they want. Is terminating two to one really any different morally?” Dr. Naomi Bloomfield

The first several times I read this quote, I was deeply discouraged.  The breezy way in which all children, not just a child with a disability, are presented as commodities under the complete control of parents rather than blessings from God himself is chilling.

But then I saw a glimmer of light.  She had equated the morality of two decisions to abort: one to abort a child with a disability, and the other to reduce a pregnancy to a single child.

She is right.  Those two decisions are not different morally.  Both result in dead children.

And even in our culture which so highly values independence and beauty and an easy life, there is still a great deal of discomfort with the idea of aborting a healthy twin just for the sake of convenience.

Could God use this discomfort to turn people away from the destruction of little babies with disabilities? Could God in his infinite wisdom connect disability to pregnancy reduction so that more people come to the right conclusion more quickly – all children are valuable?

Is that idea any more far-fetched than a politician being used by God to make slavery illegal?

God can do it!  Let us pray that he would!

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Embarrassed – and happy.

I had a feeling this might happen.

Paul was feeling pretty good as we entered church on Saturday evening.  This often means he will be more vocal, especially if a room is quiet.

Pastor Kenny was praying after some music, and the room was much quieter with his lone voice, even amplified.  So, Paul decided to sing Twinkle, Twinkle Little Star.  He really wasn’t that loud, but I whispered in his hear that he needed to stop singing.

To which he replied, as loud as he could while Pastor Kenny was praying, “STOOOOOPPPPPP ITTTTTT!”

The two of us left the sanctuary.

That was embarrassing.

But, I was also happy – taking him off one drug recently and starting another has actually allowed some of the old Paul to return, the one with personality and the occasional embarrassing outburst.  I was thankful to God for it!

A friend of mine sitting in the front row said he didn’t hear Paul shout out, so maybe he wasn’t as loud as I thought.

But Paul continued chattering away and flapping his hands, so it was a good decision to leave the sanctuary.  Thankfully, I could see and hear everything from the back.  God gave Pastor Sam an extraordinary word from 1 Peter 2, with a closing application on suffering and hope that was jaw-dropping in its power and love.  I’ll post the link when Bethlehem puts it up.

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Last week Dianne received a call from someone wanting to sell her nutritional supplements.  This person was an evangelist for that product and gave testimony to how ‘awesome’ these products have been in her life.  Dianne explored some of what she was saying and this woman freely shared that she couldn’t be happy without her nutritional supplements to give her the health she desired.

She couldn’t be happy without them.  That’s an idol.  God is clear about idols.

“You shall have no other gods before me.” Exodus 20:3

Dianne pointed out to her that eventually those supplements will fail her; her body will succumb, if not to disease then to the natural effects of time.  But this lady could not see it; her happiness was tied up in her product.   And it was more than her just representing the product – you can smell the difference between a salesperson and a true believer after awhile.

The temptation for all of us, of course, is that when we find something that ‘works’ for us – drugs, supplements, therapies, diet changes – we want to share it with everyone!  And that can come along with the unstated expectation that if you don’t do what I’ve done, you don’t really care about your family as much as you should.

We have friends in the disability community who are all over the spectrum with regards to the use or not of medicines, medical technologies or nutritional supplements to address disease and disability in our families.

Talk about an opportunity for emotional fireworks!

Fortunately, there is a respect amongst our group that each of our situations is unique and that God will help us address our situations as we discern best.  Sometimes that means looking for advice from friends in similar situations; sometimes it means exploring other ways to address issues.  We aren’t perfect at it and feelings can get hurt.  But I’m grateful when I think about how much God has helped us maintain relationships.

And the source of that help is God as the center of our hope.  When God is the center of our hope, we can be generous with each other and prayerfully dependent together even when we are attacking the physical suffering in our lives in different ways.

It also means we can be courageous when necessary.  Dianne shared with this woman that some of the things she was doing are sinful!  Like positioning the product as a cure for cancer or Down syndrome.

Or worse, like centering happiness and hope in a product that, at best, will make this vapor’s breath life a little longer when the reality of our own sin and eternity is staring all of us in the face.

No!  Rather:

May the God of hope fill you with all joy and peace in believing, so that by the power of the Holy Spirit you may abound in hope. Romans 15:13

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God helped me once again

This is what happens when I have too much time on my hands along with an iPhone and an iPad at my disposal.

I pray it honors the God who helped me and my family over this past weekend.

 

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